July 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

July 2017 - New Members

Postby Rustsmith » Sun Jul 02, 2017 3:34 pm

Sunday, July 2

Welcome to

Leigh, who has chronic familial RLS and is looking for help and support.

Please post a note telling us a bit about your RLS and what we can do to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Mlee

Postby Rustsmith » Mon Jul 03, 2017 4:17 pm

Monday, July 3

Welcome to

Mlee, who is Interested in user friendly information about RLS.

Please take a look around and then post a note telling us about your RLS, what you are doing to manage it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jphickory

Postby Rustsmith » Mon Jul 03, 2017 4:20 pm

Monday, July 3

Welcome to

jphickory, who has had RLS for 35 years and has trouble falling and staying asleep. And so is frequently tired as a result.

Please post a note telling us about your symptoms, what you are doing to manage them and asking whatever questions you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7198
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Marilyn64

Postby Polar Bear » Mon Jul 03, 2017 5:29 pm

Monday 3 July

Welcome to:

Marilyn64 - whose restless legs are getting worse as she is getting older. She is on antidepressants and believes this may be contributing to them getting worse. She is going to the doctor at the end of the month to talk about what can be done regarding medication.

Perhaps you have already been reading through the information. Take a look at 'A Good Place to Start' on this Just Joined Forum, lots of good information there. Please feel free to start a post, ask questions and tell us a little about your management of your RLS, so that you are well informed when you visit your doctor at the end of the month.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Penelope2017

Postby Rustsmith » Tue Jul 04, 2017 12:25 am

Monday, July 3

Welcome to

Penelope2017, who has given up dopamine medications because of augmentation. Now she is on a few other medications but nothing is working. She is unable to enjoy many of the things she likes to do and generally feels exhausted.

Those are all things that many of us can relate to. Please post a note telling us about your RLS, what your current treatments are and asking any questions so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7198
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to linli

Postby Polar Bear » Tue Jul 04, 2017 12:46 pm

Tuesday 4 July

Welcome to:

linli - whose RLS started at retirement. linli had expected to spend retirement traveling, doing things not done during working years. All of that is impossible, for the most part, as sitting for extended periods is out of the question. linli feels RLS steals your life.

We can all relate to what you say and would like to help. When you are ready, tell us about how you are coping at present. It is interesting that you can pinpoint exactly that symptoms coincided with your retirement. Did you start to do anything differently like taking a particular medication?
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Roadgliderider

Postby Rustsmith » Tue Jul 04, 2017 10:39 pm

Tuesday, July 4

Welcome to

Roadgliderider, who has been suffering for 20 years now, has used all the popular meds but they are not working very well.

Please post a note telling us a bit about what you have tried and what your current symptoms are so that we can offer some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to pmthomson

Postby Rustsmith » Wed Jul 05, 2017 9:07 pm

Wednesday, July 5

Welcome to

pmthomson, who has pain in the legs everyday, usually after 2pm until she is asleep at night. She is afraid to go ANYWHERE because of having to get up and walk around.

Please take a look around, especially the "A good place to start" at the top of this forum. And then please post a note telling us a bit about what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to B.kidd

Postby Rustsmith » Thu Jul 06, 2017 12:51 pm

Thursday, July 6

Welcome to

B.kidd, whose RLS is causing total misery, sleepless nights with pain, burning, and jerking. Sometimes B.kidd would like to cut legs off to stop the misery!

After taking a look around, please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to douggell

Postby Rustsmith » Thu Jul 06, 2017 4:51 pm

Thursday, July 6

Welcome to

douggell, who has been handling RLS symptoms for the past five years and is a senior senior. The evening pain is debilitating and pronounced only while in bed and in a reclining position. douggell has sought the advice of physicians and others but no remediation.

Please post a note telling us what your physicians have tried and a bit more about your symptoms. It is a sad fact that many doctors do not know much about how to properly treat RLS. So, with a bit more info, we should be able to make some suggestions for you to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to mhelen5978

Postby Rustsmith » Thu Jul 06, 2017 11:00 pm

Thursday, July 6

Welcome to

mhelen5978, who is currently on .25 mg Mirapex but is augmenting. She would like to see what her RLS is like without meds.

Take a look through out forum on augmentation. If you do decide to get off of Mirapex, pay close attention to the discussions about either quitting cold turkey or through the use of an opioid to cover the period while you quit. Either way, you should discuss this with your doctor before you try it because it will not be easy.

After you have had a chance to look around, please post a note with any remaining questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to SheilaRN

Postby Rustsmith » Sat Jul 08, 2017 7:03 pm

Saturday, July 8

Welcome to

SheilaRN, whose RLS has affected many areas of her life, but mostly unable to have a restful night of sleep. She is a nurse who works 12 hours shifts, and always feel tired.

After you have a chance to look around a bit, please post a note telling us about your RLS symptoms, what you are able to do to manage them and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Karrierac

Postby Rustsmith » Sun Jul 09, 2017 12:13 pm

Sunday, July 9

Welcome to

Karrierac, whose RLS is absolutely torturous! She can't seem to find any relief and gets very few hours of sleep, if any. She has had RLS since she was pregnant with her son in 2006. She is now 9 months pregnant with her third child and the symptoms are so severe.

Please take a look through our forum on Special Populations for suggestions for managing your RLS during pregnancy. And please post a note asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Flipper0126

Postby Rustsmith » Sun Jul 09, 2017 12:17 pm

Sunday, July 9

Welcome to

Flipper0216, who suffers every night from RLS. Flipper0216 has tried so many things and nothing seems to work and so now is looking for a solution to try.

Our experience has been that there is always something else to try. Please post a note telling us what you have tried and what you are currently doing to manage your RLS so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3285
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Mkaspari

Postby Rustsmith » Sun Jul 09, 2017 5:08 pm

Sunday, July 9

Welcome to

Mkaspari, who has been struggling with RLS for over 15 years and is looking for ideas on non pharmaceutical ways to treat it.

Take a look through our forums on Physical Treatments and Non-Prescription Meds, Supplements and Diets. But be aware that many of these are not effective for severe RLS or may only partially treat your symptoms. After looking around, please post a note telling us about what you are currently doing so that one of our members might be able to suggest something else.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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