July 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Weelcome to MJL

Postby Rustsmith » Thu Jul 20, 2017 5:31 pm

Thursday, July 20

Welcome to

MJL, who has had restless legs syndrome since adolescence, but was not diagnosed until age 42. In the ten years since then, MJL is so happy to have found a doctor who understands and helps, and the RLS website for education and support. MJL doesn't know anyone else who has this insidious disease, so wants to join the discussion board to contact others who share the same experiences.

You are indeed lucky to have found a doctor who understands and a treatment scheme to manage your RLS. After you take a look around, we look forward to hearing from you in one of our discussions, or simply start you own topic with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to

Postby Rustsmith » Thu Jul 20, 2017 11:18 pm

Thursday, July 20

Welcome to

shortee48, who is a 49yo woman who has done nothing but gain weight and become depressed because the lack of adequate exercise and sleep. She knows its an excuse, but the lack of sleep because of the RLS is making the rest of her daytime tiring.

Please take a look around, especially "A Good Place to Start" at the top of this forum. And please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions of things to try.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to olemag

Postby Rustsmith » Fri Jul 21, 2017 12:25 pm

Friday, July 21

Welcome to

olemag, who says that not being able to sleep is awful and the only medications that help at all cause a danger of falling asleep at the wheel.
Because of the need to get off all medication, olemag is now trying lavender essential oil with GP's help.

Please take a look around,especially at the sections on Physical Treatments and Non-Prescription meds to get ideas of things that have been successfully used that are not the normal medications. And make certain that you GP has tested your ferritin levels and that they are over about 75. And then please post a note telling us that meds you have tried and how your experiment with lavender oil goes.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to PLR111

Postby Rustsmith » Fri Jul 21, 2017 4:36 pm

Friday, July 21

Welcome to

PRL111, who has suffered for 20yrs and cannot find a Dr. to treat refractory RLS in Oklahoma. PRL111 needs others with like situation to advise.

Please post a note telling us more about you current situation and whether your doctor would be willing to learn from you. If not, would you be willing to travel to someplace like Dallas to be able to work with an RLS specialist?
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to devn67

Postby Rustsmith » Fri Jul 21, 2017 9:13 pm

Friday, July 21

Welcome to

devn67, whose mother battled with RLS for her entire life till she recently passed away. She regretfully passed it on and devn67 has been dealing with it now for the last 15 to 20 years. In some instances devn67's arms are also affected and although the symptoms drastically worsen in the evening, it's also an issue throughout the day.

After you have a chance to look around, please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have so that we can offer some specific comments.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to redpompoms

Postby Rustsmith » Sat Jul 22, 2017 12:21 pm

Saturday, July 22

Welcome to

redpompoms, for whom sleep has evaded for the past 3 months. She has tried everything short of the Parkinson's and addicting medications her primary care physician has tried to prescribe. She is able to cope during the day, but mainly because she is at home right now due to working only during the school year. She has been to 4 doctors plus chiropractor and acupuncture and nothing is working. She is hopeful that a visit to the sleep doctor will show that I have a lack of oxygen flowing during sleep so she can be prescribed a sleep apnea machine. I pray very hard to our Lord for help, that is her main type of coping.

Most of us take the medications that your doctor has recommended, but you might take a look through the Physical Treatment and Non-prescription meds forums to get ideas, such as the Relaxis Pad and hot baths. After looking around, please post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MMap71

Postby Rustsmith » Sun Jul 23, 2017 12:13 pm

Sunday, July 23

Welcome to

MMap71, who has had RLS her whole life and is battling trying to sleep normally.

Please take a look around and then post a note telling us what you are currently doing to manage your RLS so that we can provide you with some specific suggestions to try to improve things.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Night_Owl

Postby Rustsmith » Mon Jul 24, 2017 10:48 am

Monday, July 24

Welcome to

Night_Owl, who is unable to sleep because RLS occurs almost nightly, but sometimes in day while driving or sitting. Night_Owl's quality of life is greatly diminished by RLS.

After taking a look around, please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to johnny

Postby Rustsmith » Tue Jul 25, 2017 10:58 am

Tuesday, July 25

Welcome to

johnny, who is a lifelong sufferer of rls and would like to discuss this condition with other sufferers.

Please take a look around and then post a note telling us a bit about your RLS, what you do to manage it and asking any questions that you have. And feel free to jump into any current discussions that interest you or start a new topic.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Clairebear

Postby Rustsmith » Wed Jul 26, 2017 10:31 pm

Wednesday, July 26

Welcome to

Clairebear, who feels like her body is itching all over with frequent spasms in her legs and has recently began in her arms like they want to punch/reach out. She is fed up of sleepless nights and feeling like rubbish the next day.

After you get a chance to look around a bit, please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Gerardk66

Postby Rustsmith » Fri Jul 28, 2017 1:18 pm

Friday, July 28

Welcome to

Gerardk66, who has been suffering with RLS for about 12 years and really wants to talk with others.

After you get a chance to look around, please post a note telling us about your RSL, what you are doing to manage it and asking any questions that you have. And please feel free to jump into any of the discussions threads that interest you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to emily

Postby Rustsmith » Fri Jul 28, 2017 5:26 pm

Friday, July 28

Welcome to

emily, who is newly diagnosed with RLS and is looking for a support group.

emily, this site serves as a support group for those who do not have local access to one that they can attend in person. You are welcome to ask any questions that you have or join in any discussions of topics you find interesting. You can also check out the list of RLS Foundation's local support groups at https://www.rls.org/get-involved/find-support
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7162
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to chapan

Postby Polar Bear » Sat Jul 29, 2017 11:38 am

Saturday 29th July

Welcome today to:

chapan - who has to sleep apart from his wife and feels exhausted the rest of the day.

When you are ready please start a thread and tell us more about how RLS affects you and how you have been coping with the symptoms.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to gcsmithcon

Postby Rustsmith » Sat Jul 29, 2017 9:38 pm

Saturday, July 29

Welcome to

gcsmithcon, who at one time RLS kept from being able to sleep. He finally talked to his doctor, who prescribed Ropinirole at a small dosage. Over time that dosage has increased to 12 MG ER with another prescription for 2 MG Ropinirole as needed. It has gotten to the point that he automatically takes the 12 MG ER and the 2 MG at the same time because the 12 MG alone just isn't doing the trick.

Please take a look around, especially the forum on Augmentation because 12+2 mg of ropinirole is much larger than normal max for RLS. And please post a note telling us a bit more and asking any questions that you have so that we can provide you with some specific suggestions for moving forward.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to barb

Postby Rustsmith » Sun Jul 30, 2017 2:22 pm

Sunday, July 30

Welcome to

barb, whose RLS is worsening all the time. Her Neuro says it will keep getting worse and she is 55. She have had RLS over 20 years, but in the last 6 years its become everyday all night and all day and she can't sleep. She is currently on Senemet, ropinirole, and klonopin.

Please take a look around with careful attention to the forum on augmentation since you are having increasing issues and are on two dopamine agonists. And then feel free to post a note with the details of how much of these you are taking and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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