Restless Legs Syndrome (RLS) Discussion Board

Monday, August 14

Welcome to

Robertoff, whose doctor diagnosed RLS at age 66 and prescribed Sifrol. For the first time he had comfortable sleep. RLS has driven his life since at least age 22 - work, relationships, sport-choices. But he still feels isolated, and is seeking people with whom to discuss and share.

You have definitely found someplace to discuss and share issues associated with RLS. Please post a note telling us about the current status of your RLS and asking any questions that you have. And feel free to jump into any of our ongoing discussions that are interesting to you.

Tuesday, August 15

Welcome to

JohnHur, who can't keep still, which is affecting his work since it requires sitting at a computer for hours at a time.

After you get a chance to look around, please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.

Wednesday, August 16

Welcome to

Aj23, who has not been diagnosed by a doctor yet but this pain and weird feeling in Aj23's legs is causing worry and has left Aj23 very sleep deprived.

After you have had a chance to read through "A great place to start" at the top of this forum, please post a note with more of the details of your situation so that we can offer some specific comments to you.

Wednesday, August 16

Welcome to

Annwelle, who can't do anything in the evening because she is too tired from the medication she takes to manage her RLS.

After you look around, please post a note telling us a bit about what you are taking and asking any questions that you have.

Thursday, August 17

Welcome to

tmu, who has been suffering from RLS for all of tmu's life, but didn't realize it until 18 years ago. tmu discovered the Foundation about 15 years ago and has just discovered the board,

Welcome to the discussion board. Please post a ling telling us a bit more about your RLS and what you are doing to manage it. And feel free to jump into any discussions that you find interesting.

Thursday 17th August

Welcome to:

ranwil - whose RLS is ruining life. Augmentation following high dose Requip for 10 years. Only thing that works is a benzo/opiate cocktail and ranwil is having an extremely difficult time getting even low dose , effective medication.

Please read the Just Joined Forum thread = Managing your RLS A Good Place to Start. When you are ready please tell us of your coping strategies for RLS and what medications you have been using, forby the Requip. Are you still on the high dose Requip? Getting suitable medication is a challenge we all deal with.

Thursday, August 17

Welcome to

ranwil, whose RLS is ruining ranwil's life. Augmentation following 12 mg. Requip for 10 years. The only thing that works is a benzo/opiate cocktail and as a disabled vet, ranwil is having an extremely difficult time getting even low dose, effective medication.

We all understand since getting opioid meds is becoming increasingly difficult for all of us. Please feel free to jump into any of the conversations or start a new topic with any questions or comments that you have.

Friday, August 18

Welcome to

Jwags, who is unable to sleep more than a couple of hours.

Please feel free to take a look around and then please post a note telling more about your RLS, what you are doing to manage it and asking any questions that you have.

Saturday, August 19

Welcome to

GilbertB, who has been suffering of RLS since his student time. He is now 67 and it is getting worse although I use Siffrol and practice sports and so on. It starts earlier and earlier and makes me desperate. Several nights he has sleeping problems and as soon as he stops being active and sit down it starts...

Please take a look around, especially the section on Augmentation. And please post a note telling us what dose of Siffrol you are using and asking any questions that you have.

Saturday, August 19

Welcome to

Karine, whose lack of sleep due to RLS + depression are too much to handle at once. Finding a way to stop or at least reduce the RLS would be a great help to come out of the depression. And she would like to know what's maybe still coming as she is still quite young (40) and has had RLS probably since she was 30. Her diagnosis has just been made official last year when she went to the neurologist.

Please post a note telling us a bit about what you are currently doing to manage your RLS and what your symptoms are currently like so that we can offer some specific suggestions.

Welcome to savagenights who has RLS and neuropathy. With the opioid crisis in the US, the doc has refused to prescribe and the RLS is back with a vengeance. Working with good doctor, but taking time to get a med that works.

Sunday, August 20

Welcome to

Hannah, whose RLS has not only affected her life but it's like it affected her soul. When she mentions that she suffers from RLS, she always have to add, "do you know what is RLS and the answer is not always yes", unfortunately, so she never misses the opportunity to inform them and always adds "hope you will never have to deal with it" but we have hope that a cure is not impossible.

Thank you for being an ambassador for our condition. Please feel free to post a note telling us a bit about your RLS, what you are doing to manage and asking any questions that we might be able to help with.

Tuesday, August 21

Welcome to

Koichi Shudo, who suffered from neuropathic pain (AS) and therefore has been interested in RLS. Koichi is doing research on the chemistry and medicinal chemistry. There is a possibility of using Koichi's research results in the therapy of pain and RLS, and so discussion and communication with colleagues would definitely help RSL researchers.

The members of this discussion board are RLS patients, generally with the more severe forms of the condition. We would be happy to discuss our situations as well as what we know, but we are not RLS researchers other than that most of us are continually trying new things so that we can better control our RLS.

Tuesday, August 21

Welcome to

lzaworski, who has been plagued with RLS since childhood. Three spinal surgeries in <3 years has made it worse and now at 68 yrs old it is horrible.

Please take a look around and then post a note telling us a bit about what you are doing to manage your RLS and asking any questions that you have.

Wednesday 23 August

Welcome today to:

SuzeLeslie - who has severe RLS and needs help badly!

There is a great deal of helpful information here and if you start a thread giving some details of your symptoms and how you have treated these symptoms we will try to help.