Kratom berry compote

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS/WED, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
leggo_my_legs
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Kratom berry compote

Postby leggo_my_legs » Fri Oct 06, 2017 5:11 am

OK...it sounds better than it was! :lol:

I'm trying kratom for the first time tonight. OJ was expired, so I mixed raspberries and blueberries in the hopes it would dissolve, along with a little sour cream for taste. Which is really not compote, but it sounds nice.

So far just a hint of a headache and feeling relaxed. Took it about 15 min ago.

I am loathe to give up a possible good night of Norco to try this uncertain thing, but then again, it could really help me.

Went to new PCP today and got the 'You're on NORCO?!' Agreed to be my doctor after I said he didn't have to prescribe it. :roll:

ViewsAskew
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Re: Kratom berry compote

Postby ViewsAskew » Fri Oct 06, 2017 5:50 am

:-(
Ann - Take what you need, leave the rest

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Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Re: Kratom berry compote

Postby Polar Bear » Fri Oct 06, 2017 10:20 am

I'll be really interested to hear how you managed on the kratom. Unfortunately it is illegal with us.
Betty
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leggo_my_legs
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Re: Kratom berry compote

Postby leggo_my_legs » Fri Oct 06, 2017 2:28 pm

I didn't like it. At. All. I got it from SoCal Herb or whatever it's called.

I dissolved 1/2 teaspoon. After about 1/2 hour, I started getting weird pains in my head. At one point, I did feel pretty relaxed from a muscular standpoint.

My issue is primarily PMLS, but when I went to bed about an hour after the kratom, I had some mini RLS-type exacerbation/restlessness in my legs. I do get that sometimes with some meds...it's like the nerves are being put to sleep and getting it out of their system, that's my best guess. It's unpleasant but didn't last long.

I fell asleep. I didn't feel like I was moving about in my sleep, but I slept very lightly and I had a nightmare that my dog was dying of dehydration (the dog was also waking me up in the night as he had diarrhea). But normally I wouldn't dream of him dying because of that.

Today I feel jittery, my stomach hurts, and my head and face hurts, like pressure and brief stabbing pains, and my head feels fuzzy. In short, I really don't feel well this morning and I want to take a norco and go to bed like I should have done last night!

By means of not discouraging anyone else to try it if they think it might help them, I will say that my body does tend to be quite sensitive to medications and substances; I have multiple drug allergies and once got drug-induced hepatitis from flexeril.

This leaves me with the same problem I had before...finding a doc who is willing to work with me on the opioids. :(

Kratom is a no-go for me but I'm glad it works well for some.

leggo_my_legs
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Re: Kratom berry compote

Postby leggo_my_legs » Fri Oct 06, 2017 2:42 pm

The worst part of it all is feeling judged and getting looked at askance when I am just trying to get a decent night's sleep! Something millions of people take for granted every night.

I guess I need to develop a thicker skin. But it just makes me so angry. I feel so silenced and marginalized because I'm afraid if I speak how it feels to be treated like this, some fool is gonna write something inaccurate in my chart and I will be further pigeonholed.

ViewsAskew
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Re: Kratom berry compote

Postby ViewsAskew » Fri Oct 06, 2017 6:00 pm

leggo_my_legs wrote:The worst part of it all is feeling judged and getting looked at askance when I am just trying to get a decent night's sleep! Something millions of people take for granted every night.

I guess I need to develop a thicker skin. But it just makes me so angry. I feel so silenced and marginalized because I'm afraid if I speak how it feels to be treated like this, some fool is gonna write something inaccurate in my chart and I will be further pigeonholed.



So hard to not be angry when it is - essentially - your life that is on the line. Some people would say that is hyperbolic, but I do not think it is.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

leggo_my_legs
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Re: Kratom berry compote

Postby leggo_my_legs » Sat Oct 07, 2017 5:26 am

Exactly, Ann.

Stainless
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Re: Kratom berry compote

Postby Stainless » Sat Oct 07, 2017 1:50 pm

I tried Kratom in brownies. I used a much higher dose than 1/2 teaspoon, choked down the brownies for a week but could not feel any effects. Just yesterday my wife pulled out the other half of what I bought more than a year ago and asked me what to do with it. I'm glad some get relief using it but not what I needed.

yawny
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Re: Kratom berry compote

Postby yawny » Sun Oct 08, 2017 10:09 pm

leggo_my_legs wrote:The worst part of it all is feeling judged and getting looked at askance when I am just trying to get a decent night's sleep! Something millions of people take for granted every night.


Leggo, I may have missed this but have you considered going to a Quality Care Center? You deserve to be treated with respect and empathy. Very frustrating.

badnights
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Re: Kratom berry compote

Postby badnights » Wed Oct 11, 2017 4:06 am

leggo wrote:The worst part of it all is feeling judged and getting looked at askance when I am just trying to get a decent night's sleep! Something millions of people take for granted every night.
Two hard truths there. Each one hits me like a hammer-blow. No matter how old it gets, I can't relax about these things, especially the first one. I simply can't get used to it.

I think that doctors - being people - are just like the ignorant people I've encountered who ultimately made me decide to never reveal to anyone, no matter how reasonable they seem, that I am taking opioids. People are susceptible to the media, even wise and skeptical people, even people who should make it their business to find out the truth. If they don't know there is something to be discovered, they never look.

But how can we make them look? I suck at this. I have no stock words to defend my use of this life-saving medication. Nor to illustrate the damage done by extreme chronic sleep loss. It seems so simple, I don't understand why people don't get it when I say "I have a movement disorder that's circadian. It happens at night and prevents me from sleeping." Can't they imagine what happens to a human body when it can't sleep? But why would anyone make the effort to imagine such a thing? And lots of people say "I almost never sleep" when actually they sleep much more than we do, so the complaint has become meaningless. How do we distinguish ourselves from those people?

I do have a way I've used to great effect - but not on doctors! I would tell people there is only one disease known to mankind that causes greater sleep loss than Willis Ekbom/RLS. They inevitably say "what's that?" And I say "fatal familial insomnia. People who have it stop sleeping, and they die. Sleeping pills don't work on it. Nothing works, they die from not sleeping."
'
stainless wrote:I used a much higher dose than 1/2 teaspoon, choked down the brownies for a week but could not feel any effects.
Me too. A faint feeling of relaxation, perhaps. I might need a massive dose for it to have any effect. There is no need for me to go that route as long as I have a doctor willing to prescribe opioids.
Beth - Wishing you all restful sleep tonight
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leggo_my_legs
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Re: Kratom berry compote

Postby leggo_my_legs » Thu Oct 12, 2017 6:53 am

Thanks everyone. Badnights, your reply is so articulate.

Yawny, I've been wanting to see Dr. B or quality care center. It's like I'm too overwhelmed/sick/exhausted to be a good advocate for myself and arrange that right now. I need to. My job is ending at the end of the month so I can make that a goal with the extra time to set up an appt.

I am still recovering from my reactive airway thing and all of that drama. Just exhausted. I got a different inhaler that's helping slowly.

I'm afraid of being judged for going elsewhere by my sleep medicine doctor, that's part of what's holding me back too.

I was thinking before I logged in tonight how grateful I am for all of you and how wonderful you are. It means so much to be understood.

leggo_my_legs
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Joined: Sun Oct 16, 2016 12:29 am

Re: Kratom berry compote

Postby leggo_my_legs » Thu Oct 12, 2017 6:58 am

Badnights, I wish I would have put it back on the MD by saying, do you have a concern about that? Instead of trying to justify myself, which never quite passes that index of suspicion in their eyes.

How is it that the addicts never back down and always end up getting what they want, while the rest of us feel bad and back down.

And why don't the MDs have better training in recognizing addicts vs pain patients?! I work in mental health...it's not that hard!

badnights
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Re: Kratom berry compote

Postby badnights » Fri Oct 13, 2017 4:59 am

In 40 years, people are going to look back on the opioid paranoia in wonder and amazement at its extremities. People will say How. Could they be. So. Stupid.
Too bad I'll be dead by then. Oh well.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

ViewsAskew
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Re: Kratom berry compote

Postby ViewsAskew » Mon Oct 16, 2017 6:35 pm

leggo_my_legs wrote:Badnights, I wish I would have put it back on the MD by saying, do you have a concern about that? Instead of trying to justify myself, which never quite passes that index of suspicion in their eyes.

How is it that the addicts never back down and always end up getting what they want, while the rest of us feel bad and back down.

And why don't the MDs have better training in recognizing addicts vs pain patients?! I work in mental health...it's not that hard!


My BFF has lupus, Sjogren's and Raynaud's. Hubby is celiac and occasionally has alopecia. None of us EVER get offered ANYTHING from our doctors.

A friend from college, who lives in Peoria, IL, gets antibiotics whenever she asks, pain pills on request, etc.

Where is the middle ground???????
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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