Medical Marijuana

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS/WED, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
yawny
Posts: 227
Joined: Sun Nov 08, 2015 4:20 pm

Re: Medical Marijuana

Postby yawny » Tue Jul 10, 2018 8:14 pm

AriaLittlhous wrote:I find that the thc calms my legs, but makes my mind active, even the indica. Still the relief from the pain is very welcome.


THC makes my mind active too, to the point where I can’t sleep and walls become very interesting to stare at. What works for me is CBN (not CBD) and you get it by ageing the THC. I used to put the marijuana flower in a mason jar in my window for about a month but then figured out a quicker way by way of a UV light in a box. CBN is considered “nature’s benzo” and I think it was discovered by “recreational enthusiasts” after finding an old bag of pot that had been forgotten and therefore was aged. It makes me very sleepy, relaxed, and I’m able to turn off my thoughts and go to sleep. I primarily have PLMD now (LDN seems to have stopped my RLS except for rare, mild, and short lived events) and CBN doesn’t stop the movements. Along with a cocktail of low dose medications I’m able to sleep and feel moderately rested most days. You won’t hear about CBN a lot but if you ask about it people are usually familiar with it at dispensaries. Although not many doctors familiar with medical marijuana are familiar with it. Many think I’m messing up how I’m saying CBD when I explain my protocol, but recently I saw a naturopath for my mother who has sleep problems and the doctor asked if we had tried CBN, so hopefully it’s catching on.

NatWest
Posts: 131
Joined: Wed Jan 06, 2010 7:06 pm

Re: Medical Marijuana

Postby NatWest » Tue Jul 10, 2018 11:46 pm

Hi Aria,

What I've found in the 3-4 years I've been using it is that some strains work great and others don't really work at all. I agree, that it often seems that the THC does make the legs more relaxed. Overall though, for me, the combination works best. The CBD does stop the jerking as long as it's taken with the THC, I usually take slightly more of the THC than CBD. Lately, I've been taking a CBD tincture that is supposed to be 4 times stronger, so I'm trying to take a little less of it. And the other thing I've found is that when the RLS wakes me up 2-3 hours after falling asleep, I need to immediately take another dose of both. If I wait too long, or wait for the previous dose to start working again just because I'm up walking, that doesn't work. I now take another dose of both, right away, then walk around a bit, and usually I can go back to sleep about 20 minutes after dosing.

It's taken me a long time, but I am getting more sleep these days, and have more energy again. What I'd really love, though, is if they could figure out exactly what works and put it into a capsule so we could just swallow it and be done.

Peggy

AriaLittlhous
Posts: 6
Joined: Tue Jul 10, 2018 1:29 am

Re: Medical Marijuana

Postby AriaLittlhous » Wed Jul 11, 2018 6:46 am

Thanks Peggy. Relative to you, I've just started experimenting and I did start trying to make the cbd work, w and w/o thc, though I could try to vary that. Right now unless I take very high amounts of thc, over 25 mg, I just don't sleep. It calms my legs w/o any cbd. I'm wondering if cbd might work better for people who are thc "naive".

Polar Bear
Moderator
Posts: 7137
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Medical Marijuana

Postby Polar Bear » Wed Jul 11, 2018 10:02 pm

Anything I've read on CBD oil for RLS seems to lean towards needing a small trace of THC for symptoms relief.

I don't sleep either, my medications being of the more tradional type.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

NatWest
Posts: 131
Joined: Wed Jan 06, 2010 7:06 pm

Re: Medical Marijuana

Postby NatWest » Wed Jul 11, 2018 10:23 pm

Hi Aria,

I have to say that I do know exactly what you mean about THC. It definitely does help me go to sleep, and there's the "couch lock" or "leg lock" sensation where I feel like my legs are glued to the mattress, which is a great incentive to fall asleep. I guess I've been using the combo all this time because on my very first visit to a dispensary, after I received my very first MM card, the person who helped me recommended Critical Mass in a vapor pen. It worked immediately! And it continued to work for about 2 years, but it was sometimes hard to find, the dispensary was frequently out, but nothing else worked as well. It was close to 50-50, CBD-THC, but slightly more CBD, maybe 3 percentage points. But it would have me soundly asleep, in about 15 minutes. But, maybe tonight, based on what you've said, I'll try just the THC tincture and see how it goes. It would be nice to only have one thing to buy. I also know what you mean about your brain being very active. I've found that concentrating on deep breathing helps my brain to let go of all the craziness THC can dispense to your brain. THC can make me start analyzing everything I've ever done in my life, which can take up a lot of time! :) Hope this makes sense!

AriaLittlhous
Posts: 6
Joined: Tue Jul 10, 2018 1:29 am

Re: Medical Marijuana

Postby AriaLittlhous » Wed Jul 18, 2018 2:31 am

Can people please post the ratio of cbd to thc they’re using? Strains, delivery method and whether you were thc “naive” or not would also be very helpful. I’ve had enough luck that I feel like I want to keep trying, but it is hard. I’m tired.


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