Wahls diet for WED? Trying it.

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS/WED, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
badnights
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Re: Wahls diet for WED? Trying it.

Postby badnights » Thu May 02, 2019 6:02 am

What if I don't get to see Earley or anyone close to him? What if they look at my records and won't give me infusions? What if I can't afford the travel and infusions? Haha enough with the whatifs.

I am so tired lately, I have to do something. The symptoms have been getting worse again all winter, and after my miraculous flip to a normal circadian cycle two years ago, I have slipped out of sync again, so that now I can't even get to work consistently by 11 AM. I am being reduced to 6 hours/day, but I don't know if I can even manage that, it's completely wearing me out. I think I need to quit right now, but I would have no income until retirement age in 2.5 yrs, unless I broke into my savings. So I have to do something !

I think I'm going to die unexpectedly one of these days, just drop dead, only I'm kind of expecting it. 'I will wear out and die. I have pushed myself thru exhaustion to get things done for 12 yrs now. It was the only way to get anything done, because I'm always tired. But the scary part is that I no longer know when I'm pushing too hard. So I will just push myself into the grave, I suspect. Unless I can somehow get some sleep.

Iron infusions, dipyridamole, and some kind of retirement. I can figure this out.

Maybe I should look at the title of this topic and go back to strict Wahls diet, too.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

srgraves01
Posts: 95
Joined: Wed Apr 24, 2013 4:34 am

Re: Wahls diet for WED? Trying it.

Postby srgraves01 » Fri May 03, 2019 6:56 pm

Going Keto only helped me for about four months in 2014 I think. It seems like it has helped you longer. But I took no medications during that time. The only thing I can say that might help a little is to fast. Drink water only for a day. This has helped me during some of my worst times. But unfortunately it is not a long term solution and it is hard to do. They used to do this for epilepsy before they invented anti-epileptic drugs.

Good luck,

Steve

badnights
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Posts: 5140
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Wahls diet for WED? Trying it.

Postby badnights » Sun May 05, 2019 3:15 am

I was only actually ketogenic for about 3 months, and I couldn't sustain it because my gym workouts exhausted me. So I don't follow a keto diet, just a vaguely carb-reduced one.

I tried the one-day fast once. It was indeed hard. But you're right - - I should do it once every two months or something. I would have to pick a day I'm not going to the gym - - or would I? Maybe it wouldn't matter...it's not like I'm an Olympic athlete :D
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

badnights
Moderator
Posts: 5140
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Wahls diet for WED? Trying it.

Postby badnights » Sun May 05, 2019 3:18 am

PS Steve are you still doing without meds a couple of times a week?
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

srgraves01
Posts: 95
Joined: Wed Apr 24, 2013 4:34 am

Re: Wahls diet for WED? Trying it.

Postby srgraves01 » Mon May 06, 2019 3:26 am

No. After I stopped the sublingual buprenorphine, the pain specialist put me on codeine without Tylenol. It was too low of a dose to do much good. I then started alprazolam with the codiene, which helped my jerking. But I still felt tired during the day. After a period of time, I just couldn't go without the medication any more and only do the power plate. I think I was able to do that when I was taking buprenorphine because the amount of buprenorphine sublingual was too high and it has a long half life. I also think that my condition has gotten worse somehow. I am still holding out hope for the buprenorphine film. I have to get off of the alprazolam first. It makes me not able to think clearly. And getting off of it is harder because it actually did help my restless legs. By the way you mentioned the Dipyridamole. I think you have gone through augmentation. I tried it during the time I was taking the codeine and I have also gone through augmentation. At first It didn't seem to help, except maybe my calves. So I tried it at a lower dose of about 50 or 75 mg and it made me worse. There were two nights where I was not able to sleep day or night and many others where I only got 2 or 3 hours of sleep. I think Holland has not gone through augmentation and that may have been why it worked for him. Anyways, based on my experience, I would suggest you avoid that drug.

Steve

badnights
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Posts: 5140
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Wahls diet for WED? Trying it.

Postby badnights » Mon May 06, 2019 5:40 am

whoa. I remember you mentioned that before - about the dipyridamole making your WED worse. I didn't think it through at the time but I should try to puzzle it out why that might be. I have augmented.

Perhaps you are getting worse, as you say, but that doesn't mean it's irrevocable. I know my condition has gone up and down. I was really bad and getting worse, then I got better for a few years after switching my diet, and now for the last year I've been getting worse again. I imagine I will get better again, and I think the route to that is to lower the stress in my life.

Easy peasy. ( :lol: )

I wish you luck with the alprazolam. It's going to be difficult for you to reduce or eliminate it, not just because it's a benzo but because it's been helping your symptoms, and you have nothing but codeine to replace it with. Or will you wait until you can get the buprenorphine film?
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

srgraves01
Posts: 95
Joined: Wed Apr 24, 2013 4:34 am

Re: Wahls diet for WED? Trying it.

Postby srgraves01 » Mon May 06, 2019 1:49 pm

I have the buprenorphine film. No more codeine either.

Steve

srgraves01
Posts: 95
Joined: Wed Apr 24, 2013 4:34 am

Re: Wahls diet for WED? Trying it.

Postby srgraves01 » Mon May 06, 2019 3:47 pm

Thanks for the good wishes. Even though the film worked pretty good when I was still taking a higher dose of the alprazolam, things are not that great presently. I am trying not to go up too fast on the belbuca, because I want the effects of the alprazolam to wear off first, so I don't end up taking a higher dose of the belbuca than necessary.

Steve

badnights
Moderator
Posts: 5140
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Wahls diet for WED? Trying it.

Postby badnights » Wed May 15, 2019 6:45 am

Makes sense. Hope it goes well.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.


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