Gluten Sensitivity and RLS

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS/WED, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
jul2873
Posts: 371
Joined: Thu Nov 15, 2012 7:32 pm

Gluten Sensitivity and RLS

Postby jul2873 » Fri Jul 27, 2018 1:13 pm

There is a very interesting discussion about gluten on the British RLS board: https://healthunlocked.com/rlsuk/posts/ ... connection

ViewsAskew
Moderator
Posts: 15214
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: Gluten Sensitivity and RLS

Postby ViewsAskew » Fri Jul 27, 2018 9:18 pm

We've long known that celiac causes low iron and low iron causes RLS. I often suggest to our members who have gut and other issues that cannot be easily pinned to something else to have a test!

As far as I know, there isn't any research to show any other connection other than the low iron. This study was done in 2011: https://www.ncbi.nlm.nih.gov/pubmed/22368967
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

pamhb
Posts: 103
Joined: Tue May 01, 2007 1:11 am
Location: Canada

Re: Gluten Sensitivity and RLS

Postby pamhb » Sun Jul 29, 2018 7:22 pm

As mentioned in one of my previous threads, foods with histamine will cause my RLS to flare. This makes me sensitive to wheat products -- not because of the gluten, but because of the histamines. Bleached flour is high in histamines because of the bleaching process. Yeast is also high in histamines. Sourdough bread contains a fermented product which is high in histamines. Bread with seeds in it may be high in histamines. As a result, there are many wheat products that will be a problem for me, but not because of the gluten.

pamhb
Posts: 103
Joined: Tue May 01, 2007 1:11 am
Location: Canada

Re: Gluten Sensitivity and RLS

Postby pamhb » Mon Jul 30, 2018 1:53 am

I should also mention that histamines are linked to gut issues ....

yawny
Posts: 230
Joined: Sun Nov 08, 2015 4:20 pm

Re: Gluten Sensitivity and RLS

Postby yawny » Tue Jul 31, 2018 10:46 pm

I’ve tried going gluten free and I’ve seen no difference in my symptoms. In fact some of my best sleeps have been after a dinner of wheat pasta. My doctor told me that many of her patients can eat wheat products imported from Italy as the wheat is not the same as in the US. I looked and my pasta happens to be from Italy so maybe that’s why. But I do think I have a problem with histamine. I’ve been trying to track down what foods cause me problems and I’ve zeroed in on vinegar, sour cream, yogurt, and sourdough. Histamine seems to be the thing connecting them all. I miss mustard and ketchup so much it’s ridiculous. There are just certain foods that they make delicious and now the whole thing is ruined for me, like hotdogs and cheeseburgers, oh how I miss you. Anyway, my symptoms show up during sleep and I’m still not sure if histamine makes my PLMs worse, or if it simply makes me more aware of my PLMs. I’ve been experimenting with taking DAO supplements with each meal, and drinking nettle tea and sleep has improved but I’m not sure if it’s other things I’m doing. I’ll have to stop and see if they have actually been helping.

pamhb
Posts: 103
Joined: Tue May 01, 2007 1:11 am
Location: Canada

Re: Gluten Sensitivity and RLS

Postby pamhb » Thu Aug 02, 2018 8:52 pm

yawny wrote:I’ve been trying to track down what foods cause me problems and I’ve zeroed in on vinegar, sour cream, yogurt, and sourdough. Histamine seems to be the thing connecting them all. I miss mustard and ketchup so much it’s ridiculous. There are just certain foods that they make delicious and now the whole thing is ruined for me, like hotdogs and cheeseburgers, oh how I miss you.
I hear what you say. I have a whole whack of foods I can't eat now, and I miss all of them. On the other hand, I now lead a very virtuous life in terms of food :? I've been able to tolerate small amounts of Dijon mustard, which might work a bit better for you since it doesn't include vinegar.

I haven't tried DAO supplements yet -- did a quick bit of research and found this article by Dr. Jonenja, who's quite well respected in the field: https://www.histamine-sensitivity.com/dao-what-you-need-to-know-08-16.html It sounds like it's worth giving a try. I have studied up on foods that assist in the production of DAO, and I'm trying to include more of them in my diet, along with antihistamine/anti-inflammatory foods.


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