CBD infused cooling gel

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
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Stainless
Posts: 275
Joined: Tue Dec 01, 2015 9:30 pm

CBD infused cooling gel

Post by Stainless »

I used Kala Organics CBD infused cooling gel last night my wife bought when we were at a 4th opinion neurologist office. When we went to bed she rubbed it on the top of my thighs where my RLS resides and Wow. My RLS reacted like a very hot bath, too much stimulus for my brain to think about sending PLM signals to my legs. I got a good night of sleep, woke up early and felt good. The night before was a torture chamber all night. I don't know if it was the menthol, camphor or the CBD but I will try this again, probably tonight.

Very expensive, like $50 for a tiny pump bottle. But what do you expect at a neurologist's office. Has anyone tried this, had success and found a less expensive source.

Rustsmith
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Re: CBD infused cooling gel

Post by Rustsmith »

I haven't tried a topical CBD for my RLS. I have tried CBD gummies and tinctures. They didn't do anything for my RLS but the tincture was almost immediately effective when my RLS causes severe anxiety.

I did use a CBD cream that my surgeon gave me following hand surgery. The idea was to help reduce scarring. That surgery left fewer scars than the one that he did a year before, but less than what another surgeon did more recently where the physical therapists gave me a patch made out of a rubbery material that I would wear beneath a bandage at night. So, maybe the CBD cream helped, maybe not.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

SquirmingSusan
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Re: CBD infused cooling gel

Post by SquirmingSusan »

That's great it helped you! I haven't found CBD to be particularly helpful with RLS, but I do have some topical balm that helps with my TMJ, teeth clenching, neck tightness issues. And there are other ingredients that might be helping, so I have no clue what's in that helps.

I do find the Miracle Plus Restless Legs Calming Creme from Amazon to be quite helpful when I just need a half hour of relief until my meds kick in. It does have lidocaine, magnesium, and a bunch of other possibly-helpful ingredients in it. After the initial lavender smell, it smells terrible, but I can put up with that for a few minutes of relief.

So many of us try so many different things, it's hard to tell what really helps.
Susan

Stainless
Posts: 275
Joined: Tue Dec 01, 2015 9:30 pm

Re: CBD infused cooling gel

Post by Stainless »

Thx Susan,

My wife bought me RESTLEX made especially for RLS. They are quite proud of it $$. A mix of small amounts of Ferrous Iron, Vitamin C, Magnesium, etc. If it worked RLS would have been concurred long ago. At least I can take them as a supplement.

I've developed a very minor rash I can only attribute to the CBD Infused Gel so I quit taking it last night. I think tonight I will test menthol and camphor rub I bought at CVS for $5 and see if it gives me that distraction so I can fall asleep. Eventually I'll probably try the CBD again. Rick

jul2873
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Joined: Thu Nov 15, 2012 7:32 pm

Re: CBD infused cooling gel

Post by jul2873 »

I have a Hemp cream (Charlotte's Web) that I bought on Amazon for around thirty dollars. I rub it on my legs at night, and then pull a stretchy sock-like cover over the cream. It really helps me get to sleep.

Polar Bear
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Re: CBD infused cooling gel

Post by Polar Bear »

Jul2873 - Great that the Hemp cream is helpful.

Thank you for these posts, this information is always of interest.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Stainless
Posts: 275
Joined: Tue Dec 01, 2015 9:30 pm

Re: CBD infused cooling gel

Post by Stainless »

I've had 9 nights of restful sleep. My wife suggested I apply it to my feet and the mild rash is about gone. There were three nights in the middle when I did not use it (because of rash) and still slept well. Is it just my disease cycle? I'll take anything I can get. Kala Organics CBD is the same price as at the neurologist office, $60. That kind of surprised me. I doubt it will last a month.

Stainless
Posts: 275
Joined: Tue Dec 01, 2015 9:30 pm

Re: CBD infused cooling gel

Post by Stainless »

I had a consultation with an out of state specialist who is licensed in Florida. He advised against using CBD because it has not been studied. His view is it potentially could make things worse with permanent damage. I was surprised as another neurologist just sold me it two weeks ago and I can buy on everywhere over the counter in Florida. I seem to be sleeping better with CBD infused oil on my thighs but does not reduce the pain I wake up with several time a night, I believe with pain is from PLM. But if I wake less times I experience pain less times each night and feel more rested. So I’m torn on whether to continue CBD.

Stainless
Posts: 275
Joined: Tue Dec 01, 2015 9:30 pm

Re: CBD infused cooling gel

Post by Stainless »

It's really helping me sleep on what otherwise would have been rough nights. Not very torn on whether to continue. Getting to sleep isn't such a wrestling match with my legs. Slept thru the night last night! A $60 pump dispenser might last a month.

Polar Bear
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Re: CBD infused cooling gel

Post by Polar Bear »

I can only speak personally..... If it's helping with sleep, I wouldn't be torn on whether or not to use it. Well done.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Re: CBD infused cooling gel

Post by ViewsAskew »

Stainless wrote:
Fri Jan 13, 2023 4:49 pm
It's really helping me sleep on what otherwise would have been rough nights. Not very torn on whether to continue. Getting to sleep isn't such a wrestling match with my legs. Slept thru the night last night! A $60 pump dispenser might last a month.
That seems awesome to me!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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