I notice Beth?? periodically posts the Augmentation link.... not sure who Beth is or what that's about
Hi, I'm Beth. My username on this board is badnights. All of my posts begin with "by badnights" and end with three signature lines as follows:
"Beth
AUGMENTATION http://www.willis-ekbom.org/document.doc?id=2324
viewtopic.php?f=5&t=6532&p=61601#p61601"
Most of us moderators have decided to make useful links be part of our signatures. That way, people can easily find the basic information, stuff that is most often needed. Ann (username Viewsaskew) links to a topic called "A good place to start: managing your RLS". Betty (polar bear) links to the WED Foundations Medical Bulletin. I link to information about augmentation.
One of the saddest things about WED/RLS is the number of people augmenting on DAs. These people are suffering to a degree that is impossible to describe, and the horror of it is that it is all so unnecessary. If all physicians who prescribe DAs for WED/RLS were aware of the basic aspects of augmentation, almost none of that suffering would happen. Since so many physicians are in the dark, people who have been afflicted with augmentation need to learn about it, so that they can shine a light for their physicians to learn about it.
My last post was about amino acids:) But my signature, as always, has the augmentation links.
You remember that nothing is certain. The disease does not necessarily progress, we're all different. People are researching the disease now more than ever, so new knowledge is quite likely to enable new and more effective treatments. You're unique and different, so your experience will not necessarily be the same as anyone else's. No one is doomed. No one knows the future. And as Tracy (chipmunk) pointed out, most people with WED/RLS don't post on this board! They're too happy to bother!How do you keep from becoming hopeless and FEAR the future.
So hang in there, this down phase will pass. Nothing is for sure, and there is a lot of hope out there!