Update on what's helped my partner with all day RLS
Posted: Sat May 18, 2013 1:08 pm
Hi All-- You were so helpful and supportive a couple months ago when my partner was experiencing HORRIBLE all over, all day RLS.
We went to a sleep doctor/RLS 'expert' who started out very intent on helping. She prescribed Requip, but unfortunately that made the twitching that comes with the RLS even worse. Requip basically made it 100x worse, if that's possible. So when we called and told the doctor that, she recommended trying Clonazepam. That actually worked SO well! She'd take a half in the morning to combat the day time itching, and then 1 at night to help sleep. She could function and do normal things again-- it was fantastic. For some reason, though, that doctor freaked out about her taking it during the day-- although we told her the RLS is also during the day. She suggested a shrink (??!!) and refused to renew the prescription! So, even though she's known as an expert in the field, we cancelled the upcoming appointment.
During all of this my partner has been seeing a fantastic DO and is being treated for Stage 3 adrenal fatigue (not surprising given that her sleep patterns are so off) and other stuff. We told the doctor about the experience at the sleep clinic, and told her that the clonazepam was the only thing helping. But, the DO explained that medication wasn't part of what she usually prescribed to people and she wasn't comfortable using it long term. She's more about SOLVING a problem, finding the source, than throwing pharmaceutical at it. She gave us a month's prescription just to help in the meantime, and ordered something called Calm CP from a company called NeuroScience. She told her to start out taking it an hour before bed, to see if it at least helped the nighttime RLS. AND IT DID. Sleeping through the night! No itching!!
So now she takes 1 in the daytime if she starts to have RLS, and 3 an hour before bed. And NO RLS. It's like a freakin' miracle. She ran out of it last week and it took a couple days for them to get it in-- those 3 days she was up all night with RLS again, and had it during the day. Now we have 4 bottles of the stuff in the house so we won't run out again by accident. It's like $50 for 60 pills, but it's SO worth it.
Anyway-- the doctor is even impressed this works so well. She said it mimics what the Clonazepam does. I'd seriously buy stock in the company if I could. I know it might not work for everyone, but it might be worth a try for some of you sufferers out there! I think you have to order it through a doctor's office, but if you can find a MD or a DO who treats adrenal fatigue, they might be able to help. Here's the link to the stuff: https://www.neurorelief.com/index.php?p ... 448&pid=0#
We went to a sleep doctor/RLS 'expert' who started out very intent on helping. She prescribed Requip, but unfortunately that made the twitching that comes with the RLS even worse. Requip basically made it 100x worse, if that's possible. So when we called and told the doctor that, she recommended trying Clonazepam. That actually worked SO well! She'd take a half in the morning to combat the day time itching, and then 1 at night to help sleep. She could function and do normal things again-- it was fantastic. For some reason, though, that doctor freaked out about her taking it during the day-- although we told her the RLS is also during the day. She suggested a shrink (??!!) and refused to renew the prescription! So, even though she's known as an expert in the field, we cancelled the upcoming appointment.
During all of this my partner has been seeing a fantastic DO and is being treated for Stage 3 adrenal fatigue (not surprising given that her sleep patterns are so off) and other stuff. We told the doctor about the experience at the sleep clinic, and told her that the clonazepam was the only thing helping. But, the DO explained that medication wasn't part of what she usually prescribed to people and she wasn't comfortable using it long term. She's more about SOLVING a problem, finding the source, than throwing pharmaceutical at it. She gave us a month's prescription just to help in the meantime, and ordered something called Calm CP from a company called NeuroScience. She told her to start out taking it an hour before bed, to see if it at least helped the nighttime RLS. AND IT DID. Sleeping through the night! No itching!!
So now she takes 1 in the daytime if she starts to have RLS, and 3 an hour before bed. And NO RLS. It's like a freakin' miracle. She ran out of it last week and it took a couple days for them to get it in-- those 3 days she was up all night with RLS again, and had it during the day. Now we have 4 bottles of the stuff in the house so we won't run out again by accident. It's like $50 for 60 pills, but it's SO worth it.
Anyway-- the doctor is even impressed this works so well. She said it mimics what the Clonazepam does. I'd seriously buy stock in the company if I could. I know it might not work for everyone, but it might be worth a try for some of you sufferers out there! I think you have to order it through a doctor's office, but if you can find a MD or a DO who treats adrenal fatigue, they might be able to help. Here's the link to the stuff: https://www.neurorelief.com/index.php?p ... 448&pid=0#