Polar Bear wrote:l
Oh my, your experience is showing dipyridamole to be worth considering in more ways than one.
Betty, my experience with dipyridamole was similar to leg's. Didn't help with urge to move. Helped some with sleep, but main effect for me was feeling "more normal" in the day time. It is hard for me to describe exactly what this is, but it was a big effect, and I will readily go back to it if for some reason I can't get my next IV Iron infusion in a timely fashion.
I'm not sure what the creepy crawlies are, so I think that is not part of my RLS symptom cluster.
The initial small trial group that was reported to have a beneficial effect with dipyridamole on both urge to move and sleep was done on untreated patients with mild RLS. Clearly doesn't help in the same way for us with severe RLS.