Medical Marijuana

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
Rustsmith
Moderator
Posts: 6509
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Medical Marijuana

Post by Rustsmith »

Welcome to the forum crazy joe. I experienced a very slight headache the next morning during my experiment during my Colorado. At the time, I thought that this was due to the MM but I changed my mine about this once I returned home. I now believe that the headache was due to effect of the the very dry air in Colorado on my sinuses. I normally live in a humid environment, so it was going to take a bit longer than a week to adjust.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

crazy joe
Posts: 64
Joined: Thu Aug 27, 2015 6:14 pm
Location: atlanta ga

Re: Medical Marijuana

Post by crazy joe »

Thankyou Steve.....From reading all these posts it appears if you can get a right ratio of cbd to th you can be off the meds and feel good again. I have to give this another try... I also remember being light headed since elevation was very high....Anyone dreaming again?????

Rustsmith
Moderator
Posts: 6509
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Medical Marijuana

Post by Rustsmith »

The problem you will face in Pueblo is that if you have to go to a Recreational store, you will not have as much choice about THC/CBD ratio unless you are buying buds to smoke or vape. Also, the elevation in Pueblo isn't all that high, it is about 3500 ft. Granted that is higher than Georgia, but it isn't as bad as Denver or back into the mountains.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

NatWest
Posts: 162
Joined: Wed Jan 06, 2010 7:06 pm

Re: Medical Marijuana

Post by NatWest »

Good morning, crazy joe, welcome to the discussion!

As you can tell from reading all of the posts, most of us are experimenting. I have about 27 mm dispensaries within 5 miles of my home, and still am trying to put together the perfect combination. One problem is a lack of research and studies. Another is that rls can be different for each person. I have found several different varieties that work very well at making symptoms go away quickly. Most have a close to even ratio of CBD to THC, with slightly more CBD, but pretty much anything I smoke/vape actually works well at stopping tymptoms in their tracks. The problem is, it doesn't have a long lasting effect, like all night, so I'm looking for something that will fill in that gap, and edibles seem, right now, to be a possible solution. Another member gave me a recipe she had tried for cookies, adding 1/8 tsp of crushed up mj to each cookie, but I found I needed 1/4 tsp per cookie. I eat it about 30 minutes before dinner, and it seems to start working 4-6 hours later, and lasts for about 4-5 hours. So if I eat it at 6:00, and go to bed at 10:00, the cookie will kick in around midnight, and last til about 5:00 am. This schedule can be easily adjusted based on your own sleep schedule. I also have a cbd tincture and something called Agave Stix that I keep in a cooler next to the bed, in case there's a gap between the vaped dose and the edible dose. Both work quickly and last for 1-3 hours.

For some, this may all be too cumbersome compared to taking a pill, but for me it's preferable to having augmentation all day from taking something that requires withdrawal to get off of. And I can go get more whenever I need it, 7 days a week. I've been working on this for about 6 months now. The 1st 4 months all I did was use the vapor pen before I went to bed and I was good all night, but after that I began to occasionally have symptoms in the middle of the night, so that's what I'm working on now.

If you have any specific questions I'll be happy to try to answer them. I appreciate all of the posts from others, I think every bit of information is helpful.

crazy joe
Posts: 64
Joined: Thu Aug 27, 2015 6:14 pm
Location: atlanta ga

Re: Medical Marijuana

Post by crazy joe »

Thank you NatWest.... Overall your mood sounds good..How is your energy levels and clarity of mind during the day?..I saw your first post... My ankles are hurting currently and sometimes my fists are clinched at night. My doc says it is the rls....I think my wife has had enough of me... She doesnt want me to try colorado again since I had a really bad trip. I stayed with a house of alcoholics/drug addicts that were abusing the mmj...I still feel that if I can get a higher level of cbd/thc then it should help... Are there capsules of cbd---- time release?....

crazy joe
Posts: 64
Joined: Thu Aug 27, 2015 6:14 pm
Location: atlanta ga

Re: Medical Marijuana

Post by crazy joe »

Also reading your post about edibles is it more thc than cbd based? When i was in colorado 4 years ago I tried edibles, maybe too much and was pretty much out of it the next day..Thx Natwest...

User avatar
corynski
Posts: 34
Joined: Thu Sep 16, 2004 7:09 pm
Location: lancing, tn.

Re: Medical Marijuana

Post by corynski »

Thanks everyone......

This is a great thread regarding a subject so few of us have to deal with, and it brings back many memories. Years ago I noted a few things about mmj, for example I noticed it could dry up a head cold, such that instead of all the constant sniffling and blowing my nose at work, my head was dry and clear. Another time I noticed that even though I wanted to have dreams I didn't, or couldn't, but that this could be a real advantage for those coming back from fighting with PTSD, Post Traumatic Stress Disorder, or for someone like my son who suffered from bad dreams from his growing up at the deaf school. We don't know yet just how much help this could be, such as for someone who was traumatized as a child or such.

One thing I would like to stress is that if you have no prior experience with mmj it's best to have an experienced friend nearby in case of a bad reaction. With someone nearby to assure you're being watched there would be much less chance of any trouble. People's minds react differently to it, and it acts differently on different people at different times. It was referred to as the 'set and setting' of the experience in years long ago, when the 'hippies' were so haphazard in their use of it. If you couldn't trust the people around you, a bad experience was much more likely.

I think this thread is valuable since so few doctors are really familiar with RLS, or WED, and our experiences are of value to any newcomer to the problem, as well as to the doctors who have never experienced it. I still well remember the looks of people to whom I described it, and the disbelief it produced. Now I'm in a similar situation with my son who was born deaf with rubella syndrome ..... then he had a stoke a year ago and received a diagnosis of Moyamoya Disease, followed by two brain operations. https://en.wikipedia.org/wiki/Moyamoya_disease

And the beat goes on...... thanks everyone for participating here, we're gaining on it......

charley, 77, lancing, Tn.
"The real, the deepest, the sole theme of the world and of history, to which all other themes are subordinate, remains the conflict of belief and unbelief." -- Johann Wolfgang Goethe

NatWest
Posts: 162
Joined: Wed Jan 06, 2010 7:06 pm

Re: Medical Marijuana

Post by NatWest »

Hi again crazy joe,

Yes, the thing with edibles is you can consume too much, and it takes several hours to get out of your system. But it will eventually. I smoked it when I was in college. Everyone did back then, even my dad and step-mother, other family members, sorority sisters, co-workers, athletes, professors .... I honestly didn't know anyone who didn't. But I stopped when we decided to have kids, and never did again until earlier this year. I can truthfully say I never had any bad experiences back then. And yes, the edibles do contain predominantly thc and very little cbd. I only take them for the purpose of sleeping, so not sure what effect they'd have if I ate them for breakfast! :)

And charley, yes, I thoroughly believe that there are many, many medical conditions that can benefit from mm. Here in Oregon there is a long list of qualifying conditions when you apply for your mm card. Thank you for sharing the information about your son. I had never heard of this condition before. And you are right, it can also be used to treat ptsd. The very first time I visited a grower here in town there was a Marine who had driven down from Portland to see this particular grower about getting mm for ptsd.

crazy joe
Posts: 64
Joined: Thu Aug 27, 2015 6:14 pm
Location: atlanta ga

Re: Medical Marijuana

Post by crazy joe »

Thank you guys....So if I go in January for 1 month (last time it was 3 days) would this be enough time to say 'OK time to move to a MMJ state? Does anyone know if they have been using MMJ or mary jane for years and there sxs are ok?
My cousin has a mmj card but how do I get advice to which brand would be good for me? CBD trial and error????? There has to be a nuero specialist that recommends mmj....


My cousin has been sober for 24 years... Me for 12years but im at the breaking point...I do trust him and he said he would take care of me and not put me in harms way... I heard that there is a formula called charlottes web 50:1 cbd ratio that could help and its sold in boulder springs...Again thank you for the help ------- my last visit was terrible...
Last question: has anyone stayed on low dosage of requipp/mirapex with mmj.... just curious.... I hear this is done in california for treatment....

NatWest
Posts: 162
Joined: Wed Jan 06, 2010 7:06 pm

Re: Medical Marijuana

Post by NatWest »

Hi crazy joe,

You are right, Charlotte's Web was developed in Colorado to treat children with epilepsy and other seizure disorders. I don't know if it's not available in other states, at least I've never seen it here, but it's always in the back of my mind as something I'd like to experiment with. One month is certainly better than 3 days. Many brands are grown and developed locally, so it may be difficult to recommend a brand name, as far as the company who manufactured it, but varieties of marijuana are pretty universal. I'd guess there are hundreds. I submitted a list of some that had been found to be effective for rls a couple of weeks ago, and I'll give it to you now: most effective: Oregon 90, Blue Haze, and White Berry others that also have been shown to be beneficial for rls: Blue Moon Rocks, Big Bang, Deep Chunk, Herijuana x Trainwreck, Medicine Woman, Juicy Fruit, Jack Herrer, C99 x Great White Shark, Blue Satellite, Hog, Chronic

I've actually tried varieties of Trainwreck and found that they work very well for me, also Jack Herrer. Still looking for the others. I'll try to give you recommendations as I learn of them, and I'm sure others here on the discussion board will also. I'm currently using Black Dahlia and Strawberry Cough in my edible recipes and have had good results.

crazy joe
Posts: 64
Joined: Thu Aug 27, 2015 6:14 pm
Location: atlanta ga

Re: Medical Marijuana

Post by crazy joe »

Thank you again... Are these varieties I can get in Colorado? Do they take away neck pain too?..I think you mentioned a topical ointment for muscle pain... I had a tooth pulled on thursday so Ive been taking loratab for the pain... also took trazadone and requipp.....plus advil....Feel drugged out this morning...My physical therapist invited me to denver for 5 days but I think this is not enough time to experiment successfully...not sure...

Been off coffee now for 3 days... Harder getting off this than alcohol 12 years ago... anyone able to drink coffee>

NatWest
Posts: 162
Joined: Wed Jan 06, 2010 7:06 pm

Re: Medical Marijuana

Post by NatWest »

Good morning, crazy joe, sorry to hear you are not feeling well this morning. That's a lot of medications!!! Hope your tooth pain goes away soon. 5 days isn't enough to get any concrete results, but might allow you to try a few things. Those names I listed are varieties of marijuana that are grown. Most should be available in any state where mj is sold. You can probably go on google and type in mj dispensaries in Denver (or any other city you go to visit) and many will list all the varieties and other items they sell, including prices, at least they do here. And yes, there are topical oils and balms for pain. The dispensary I go to has a chiropractor on staff who can help with pain issues, so that might be something you could also look for and check out for your neck. And, yes, I am a coffee drinker. It doesn't seem to affect my rls one way or another, but I've found if symptoms wake me up in the morning and force me to get out of bed, the first few gulps of coffee make them go away instantly. I don't recommend it, because I know for many coffee is a trigger, but for me, it does just the opposite. Hopes this helps to answer your questions.

crazy joe
Posts: 64
Joined: Thu Aug 27, 2015 6:14 pm
Location: atlanta ga

Re: Medical Marijuana

Post by crazy joe »

IThank you again... Just came off of Gabapentin too... Probably too quickly....Withdrawals very similiar to benzo withdrawals....I was on gabapentin for 3 months upto 2400 mg and told the doctor I didnt want to be on this med repeatedlyy---(depression and other thoughts)....I wish I was there now , in Colorado... Withdrawals im having are confusion, disassociation, depression--------was thinking of taking the loratab as prescribed for rls for a couple of days more to get thru w/ds of the gabapentin.... I've been off and on narcotics for the last 2 years and know NOT to take them more than 2 weeks in a row..or I can just take trazadone with requipp tonight and try to sleep with that for a couple of days..I'm confused and befuddled... doctors dont know hoe to treats this problem also---- hit or miss This stinks...
I'll be reading up on the list you gave me....to get thru another day

Orrel
Posts: 101
Joined: Sun Jun 15, 2014 12:23 am

Re: Medical Marijuana

Post by Orrel »

Crazy Joe, You say that your gabapentin withdrawal is similar to benzo
withdrawal. What was your benzo withdrawal like? I am currently on
.375 mg of clonazepam (down from 1.5 mg.) I am reducing it very slowly
1/8 of a pill every one or two weeks. I wonder what it would be like the
closer i get to no pill. This is all I take for my rls. I augmented on 2 d.a.'s;
Lyrica scrambled my brain and opioids scare me. If I get off the benzo, then
I will be flying solo. Now that I am free of d.a.'s (I took off my last Neupro
patch on July 15) I want to see what living with my baseline symptoms will
be like.

crazy joe
Posts: 64
Joined: Thu Aug 27, 2015 6:14 pm
Location: atlanta ga

Re: Medical Marijuana

Post by crazy joe »

Hey Orrell.... it wasnt pleasant coming off the klonopin... 3-6 months w/ds....infra red suana helped.. I then tried all kinds of supplements for a year.... Not good....Then I went on requipp----- went upto 2.0 and thought I was augmenting....so I am at a crossroad----- give mmj one more try for a whole month in jan 2016 colorado and see if I can tolerate any side effects from taking too much thc the night before....I will be bringing my apap this trip which may make a difference. Sorry to hear about your trip on dopa drugs... how much did you go upto on the meds and how long were you on them.... I'm slowly titratiing up.... occassionally taking loratab, horizant, trazadone.....

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