Medical Marijuana

[NatWest]

I wish the Mirapex had worked so well for me. I only took it about 4-5 years, but the augmentation that occurred all day long during the last year (same as previously happened with Requip) made it ineffective for me. It would start as early as 9:30 or 10:00 am and I'd still be standing up to watch tv in the evenings. But I would describe mine as "moderate" also, compared to what some others have described. My dosage was similar, typically, I'd take 1 around 1:00, and 2 around 7:00, but at times took more or less, from .50 to 1.25/day. I know alcohol can trigger symptoms later that evening. It would be interesting to find out if drinking alcohol can be a cause initially. Although, I do know someone who does not drink at all, and still has rls. Seems to be a lot of variables with this disease.

[Polar Bear]

I am a virtual tee totaller have have been for about 30 years, even before that 'in my youth' I didn't drink a great deal of alcohol.

[crazy joe]

Hey guys day 4 of gabapentin w/ds.... Talked to a friend in NY which also has rls and sleep apnea... She has a local guy that knows a local guy that gets her mmj illegally.... I'm not saying this is for me but the thought has crossed my mind.....My wife will shoot me and throw me out on the lawn waiting for the police to pick me up

[crazy joe]

update.... my wife is ok with me going for 2 weeks to try it.. its not that I need permission but she has a terrible stigma against it......I read something about longivity and rls---- scared the wee out of me....I need to stay positive

[NatWest]

Yes, stay positive! It will pay off ...... and no, I've never heard of TJ-54, I'll google it while I'm watching Jeopardy.

[badnights]

"can the RLS be brought on with alcohol"

Personally I find that it can be, but it doesn't seem to be consistent. There may be factors I'm not aware of .... for a while, it seemed that draft beer and red wine brought it on but bottled beer and white wine were ok. Now, though, I have noticed ill effects from white wine. Maybe it was coincidence any or all of those times... there are too many variables to be sure. But I am fairly sure it exacerbates the symptoms at least sometimes. I would bet a week's pay on it, any way .

I am allergic to gluten and casein (proteins present in wheat and dairy, respectively), and I learned recently that people who are very sensitive to gluten might react to some red wines that are casked in barrels that have been sealed with wheat paste; and also, to wine that has been "fined" with wheat gluten (a process in which gluten or another protein is added to the wine to help suspended matter sink to the bottom). No one is sure this reaction has happened to anyone, but it's being talked about and studied. The reason I think it's relevant is because my WED/RLS has retreated since I got rid of gluten and casein in my diet, so there may be substances in some alcoholic drinks that act as triggers to WED. Not necessarily the alcohol itself.

[NatWest]

Thanks, badnights. I hadn't heard this before. Think I'll give gluten-free a try. And I'll go get some gluten-free flour for my mm cookies.

[ViewsAskew]

If gluten bothers anyone, the most likely culprit is not necessarily gluten, may actually be FOMAPS - a specific type of carbohydrate. In the most recent study (small, but relatively well done), everyone who thought they were gluten intolerant/sensitive turned out not to have issues with gluten when fed a highly controlled diet. Instead, they reacted to these specific carbs. I can provide links to the info if anyone wants it.

I always say this when gluten comes up - and I know that most will test negative - but anyone who appears to have any issues with wheat/gluten should absolutely have a celiac test BEFORE they stop eating gluten. Almost no one wants to go back to eating it if the diet helps. But, without a correct diagnosis, unless you are extremely careful, you can get small amounts of gluten. That would be bad if you were celiac.

[KonaKathie]

I began using Medical Marijuana a couple of years ago here in California. I began because I experienced augmentation when taking Mirapex. Some suggested that I needed to take a "drug holiday" from the Mirapex so that it would still be effective but not cause augmentation.

I started with regular pot, any old strain, but was told by more sophisticated "budtenders" at the dispensary that strains high in CBD were most effective for my ailment. They still have THC in them, but minimal amounts-THC is the cannibinoid that gets you "high." I believe Colorado has been breeding varieties for this- strains you may have heard of for treating kids with seizures. I am not aware of ANY cannibinoids (the natural medicinal compounds) being extracted from hemp. Hemp has almost no THC or cannibinoids in it, which is why it's so ridiculous that it's been off limits in this country for years.

I have had such good results that I only take Mirapex now when I have to travel and can't bring my meds across state lines. Getting a vape pen is a good supplement as you can smoke it almost anywhere (non-smoking hotel rooms.) The effects are not as good for me, however, with a vape. I need to smoke the actual herb, and I use a bong. I have also tried the Goldcaps, which look just like vitamin E capsules, so are good for traveling, but I don't find them terribly effective. Maybe that's because I have found myself to be "immune" to the effects of edibles in general.

My sleep specialist Doctor was amazed, and despite initial reluctance, has begun to suggest it to those who may not be getting relief from pharmaceuticals. The price is extremely cost-effective.

I'm 56 and never dreamed I'd be a cannabis advocate. I urge anyone who suffers and is not getting relief to try it, in a safe familiar environment. It may surprise you.

[ViewsAskew]

I began using Medical Marijuana a couple of years ago here in California. I began because I experienced augmentation when taking Mirapex. Some suggested that I needed to take a "drug holiday" from the Mirapex so that it would still be effective but not cause augmentation.

I started with regular pot, any old strain, but was told by more sophisticated "budtenders" at the dispensary that strains high in CBD were most effective for my ailment. They still have THC in them, but minimal amounts-THC is the cannibinoid that gets you "high." I believe Colorado has been breeding varieties for this- strains you may have heard of for treating kids with seizures. I am not aware of ANY cannibinoids (the natural medicinal compounds) being extracted from hemp. Hemp has almost no THC or cannibinoids in it, which is why it's so ridiculous that it's been off limits in this country for years.

I have had such good results that I only take Mirapex now when I have to travel and can't bring my meds across state lines. Getting a vape pen is a good supplement as you can smoke it almost anywhere (non-smoking hotel rooms.) The effects are not as good for me, however, with a vape. I need to smoke the actual herb, and I use a bong. I have also tried the Goldcaps, which look just like vitamin E capsules, so are good for traveling, but I don't find them terribly effective. Maybe that's because I have found myself to be "immune" to the effects of edibles in general.

My sleep specialist Doctor was amazed, and despite initial reluctance, has begun to suggest it to those who may not be getting relief from pharmaceuticals. The price is extremely cost-effective.

I'm 56 and never dreamed I'd be a cannabis advocate. I urge anyone who suffers and is not getting relief to try it, in a safe familiar environment. It may surprise you.

[NatWest]

Good morning, KonaKathie,

I was so happy to see your post, and learn that I'm not the only one who has found some relief with mm. I was especially interested in the fact that you have kept Miripex available for traveling. I've been wondering if that would work, taking it for just a short time when traveling out of state, as I've been planning to do that a couple of times during the next six months, but have been very hesitant, and wasn't sure if it would work to just start taking it again for a short time. I'm also going to see if Goldcaps are available here, and might test those out if I can find them.

I use a vapor pen with high cbd for immediate relief, but it only lasts for about an hour or two, so have been doing edibles at bed time for the last 3 weeks or so, which I make myself, with a ratio of 1/4 tsp crushed mj per cookie. I'm finding that it works really well, but only gets me to about 2:00 or 3:00 am, then I need to do something else if I want to sleep longer. Two things that seem to work really well at this point are Infiniti Drops and Agave Stix, as one small dose of either puts me right back to sleep for 2-3 more hours.

I'm wondering if smoking with the bong makes it last longer than a couple of hits off the vapor pen? I've been talking to my husband about maybe getting a bong.

Thanks again for your post, I found it very helpful, and encouraging.

[pinkynose]

Do any of you have burning sensations in your legs in addition to RLS? It seems I also have small fiber neuropathy besides RLS and the high CBD formula doesn't work for the burning sensation for me. I realize that this is a RLS board but I'm thinking there may be some people like me out there who are experimenting. I do belong to a Peripheral Neuropathy board but I gotta say this board rocks in comparison.

[NatWest]

Hi pinkynose, I found this web site that addresses neuropathy and treatment with cannabis. Maybe something there will be helpful to you: http://www.medicalmarijuanastrains.com/ ... europathy/

[crazy joe]

Hey guys.....back in ga....konakathy, if i experiment in california, i was thinking of staying on a low dose of requipp with the mmj.....will this help or hurt me to see if mmj works in your opinion.....also for the forum question: with tge dopa drugs time of dosage always seems important.....how is eveyone timimg your dosage of mmj.....when sxs occur or when you are ready for bed?

[crazy joe]

also does anyone have a chart for me to put daily logs of meds/sleep.....I need to track what is going on with me....My wife and i had a sit down talk....I think she understands what Im going thru.... She doesnt want to move yet but may in 3 years so in the meantime im going to see if this even works.... the positive re-inforcement I keep on seeing is all your good posts and that there maybe a solution for me...The fatigue that I'm having during the day is terrible.... Sometimes I can nap for 15 minutes before waking back up...I hope the mmj works for me and that i dont feel fatigued the next day and I sooooo miss my coffee..... Any coffee drinkers out there???/..... day 9 w/o coffee----or gabapentin-----taking .75 requipp.....-------'