Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
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Polar Bear
Posts: 7846
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland


Post by Polar Bear »

Important news!

Starting May 1st, the Willis-Ekbom Disease Foundation is reverting to its original name: Restless Legs Syndrome (RLS) Foundation.

After adopting the term Willis-Ekbom disease in 2013, the Foundation and the board believes that the terms restless legs syndrome will better support its mission of improving the lives of people with RLS by increasing awareness, improving treatments and through research, finding a cure.

Karla Dzienkowski, the executive director of the RLS Foundation, explained why. “We have heard from countless Foundation members, healthcare providers and researchers that restless legs syndrome is their preferred term. It is descriptive and easy to use. And it is the name almost universally used in medical and scientific circles, including the daily conversations that our members have with their doctors and families. The familiarity and name recognition of restless legs syndrome will best support the Foundation’s fundraising, membership and education efforts going forward.”

As moderators, we recall that there were many strong opinions about the name change in 2013. Some of us may prefer the return, some of us may not. Either way, the decision is made and we hope that the name is much less important to us than what the Foundation can do to support and help us, its members. ... id=2825699
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

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