Essential Oils

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS/WED, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Essential Oils

Postby debbluebird » Fri Feb 17, 2017 9:23 pm

Again, I had mild RLS last night, which woke me up, but I was able to go back to sleep. Still took less Methadone. I guess I will stay on this track for now. Don't know if withdrawal is a component. I'm still using the oils too.

legsbestill
Posts: 328
Joined: Tue Aug 30, 2016 7:22 pm
Location: Dublin Ireland

Re: Essential Oils

Postby legsbestill » Sat Feb 18, 2017 9:53 pm

Thank you for posting so consistently about this. I am so pleased that the oils have had such a positive benefit. It is really interesting to read of as it unfolds. It does seem to be a fantastic outcome and long may it continue. In your shoes, I would be very tempted to continue reducing the methadone but bearing in mind the long half-life, it might be wise to go very gradually at that.

debbluebird
Posts: 1589
Joined: Mon May 21, 2012 3:27 pm

Re: Essential Oils

Postby debbluebird » Sun Feb 19, 2017 4:39 am

I've been through the weaning and withdrawal before. It was hell. A month of withdrawal. Last night I was wide awake until after 3 am. I'm sure that was part of it. Then after that, some RLS. Then was able to sleep til after 10 am.

ViewsAskew
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Location: Chicago

Re: Essential Oils

Postby ViewsAskew » Sun Feb 19, 2017 8:27 am

yeah, it isn't easy to stop, is it. We were stopping it at the same time last time...neither of us had much sleep for a few weeks.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1589
Joined: Mon May 21, 2012 3:27 pm

Re: Essential Oils

Postby debbluebird » Tue Feb 21, 2017 9:39 pm

I decided not to stop it. There's nothing else for me to take.

ViewsAskew
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Location: Chicago

Re: Essential Oils

Postby ViewsAskew » Tue Feb 21, 2017 10:24 pm

I hear you - the ONLY reason I will stop it in the future, most likely, is that I want to prevent tolerance. For some it's not an issue, but is for me. Stopping it does help.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1589
Joined: Mon May 21, 2012 3:27 pm

Re: Essential Oils

Postby debbluebird » Sun Mar 19, 2017 9:51 am

I've had several periods of no symptoms, which is good. Then periods of light symptoms, where I don't have to get up, just get on that side. It has cycled around though and back to severe. Each time it gets back to severe, the leg jerks get worse. They have become more and more painful. My poor thigh muscles get weaker. Even during periods of lesser symptoms the muscles in my thigh seem worse. The last couple of nights the pain has been so bad, I had to get up. Luckily it only lasts a second, but because my thigh isn't bouncing back, the pain is not going away totally. I stay up at least an hour. It hurts to raise my leg to get into the car, etc. The jerks seem to have weakened my thigh.
I can't imagine the pain getting worse than it is. I will be glad when it cycles back to no jerks, no symptoms. Hope it doesn't take too long.

badnights
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Location: Northwest Territories, Canada

Re: Essential Oils

Postby badnights » Mon Mar 20, 2017 4:59 am

I hope it gets better soon, Deb. It sounds awful.

That's interesting that it cycles. Have you noticed if the length of the cycle stays about the same, or is it totally random?
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

debbluebird
Posts: 1589
Joined: Mon May 21, 2012 3:27 pm

Re: Essential Oils

Postby debbluebird » Mon Mar 20, 2017 8:51 am

I haven't kept track of how long each kind lasts. Do you think it's worth doing ?

ViewsAskew
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Location: Chicago

Re: Essential Oils

Postby ViewsAskew » Mon Mar 20, 2017 10:37 pm

What do you have to lose?
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1589
Joined: Mon May 21, 2012 3:27 pm

Re: Essential Oils

Postby debbluebird » Mon Mar 20, 2017 10:58 pm

I will keep track for awhile, but I don't know that the information will be helpful. What are you both thinking ? All I do know is that, if the pain was constant, it would be intolerable. It is very painful and getting worse each time.

ViewsAskew
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Location: Chicago

Re: Essential Oils

Postby ViewsAskew » Tue Mar 21, 2017 2:07 am

it might correlate to something. You are not menstruating, but it could be another drug, food, when you take trips up or down the mountain. Or maybe it literally is so many days between attacks. I have NO idea. And it may simply be random. But, until you look, you will not know. And looking might find something that helps you.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1589
Joined: Mon May 21, 2012 3:27 pm

Re: Essential Oils

Postby debbluebird » Tue Mar 21, 2017 3:04 am

Thanks

badnights
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Location: Northwest Territories, Canada

Re: Essential Oils

Postby badnights » Wed Mar 22, 2017 9:54 am

yes, as Ann said. It might reveal something. Even if that's a slim chance, I would invest the energy just in case.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice


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