Exchange mild discomfort now for longer time to reach augmentation?
Posted: Wed Jun 27, 2018 9:53 pm
I have been dealing with RLS for several years. Was on steadily increasing amount of Gabapentin, Requip, and now NeuPro and Tamazepam. I have read occasional articles about the long term prospects for RLS, but it all seems like it's talking around the subject and not telling us straight out what lies ahead.
Based on one search paper and several doctors' and patients' opinions, here is what seems to me to be the likely long term case. Am I on track, or am I missing some (hopefully) good news.
1. If we live long enough, we RLS patients are going to experience augmentation (decreased effectiveness of RLS meds with no new ones in the pipeline, and worsening symptoms).
2. We can use the amount of meds needed for symptom relief now, but we are likely to hit an augmentation wall sooner or later. This includes hitting that wall, then switching to a different med, hitting augmentation with it, etc.
3. Or, could we use only the minimum dosage needed to bring symptoms to the tolerable level in exchange for longer time until augmentation sets in? This may tie in with some discussion areas dealing with opioids and whether to use them or not.
If my descriptions are correct, then we will experience comfort for awhile, followed by misery; or we will experience mild comfort accompanied by mild symptoms now, in exchange for longer time before augmentation and misery.
Please tell me there's a more comfortable journey ahead.
Thanks!
Based on one search paper and several doctors' and patients' opinions, here is what seems to me to be the likely long term case. Am I on track, or am I missing some (hopefully) good news.
1. If we live long enough, we RLS patients are going to experience augmentation (decreased effectiveness of RLS meds with no new ones in the pipeline, and worsening symptoms).
2. We can use the amount of meds needed for symptom relief now, but we are likely to hit an augmentation wall sooner or later. This includes hitting that wall, then switching to a different med, hitting augmentation with it, etc.
3. Or, could we use only the minimum dosage needed to bring symptoms to the tolerable level in exchange for longer time until augmentation sets in? This may tie in with some discussion areas dealing with opioids and whether to use them or not.
If my descriptions are correct, then we will experience comfort for awhile, followed by misery; or we will experience mild comfort accompanied by mild symptoms now, in exchange for longer time before augmentation and misery.
Please tell me there's a more comfortable journey ahead.
Thanks!