Augmentation again (of course)

Use this forum to discuss any issues associated with Augmentation
oceanwalker
Posts: 109
Joined: Fri Aug 23, 2013 12:02 pm
Location: Canada

Re: Augmentation again (of course)

Postby oceanwalker » Sat Mar 23, 2019 12:12 am

Ann and Betty and Everyone who answered my posts...thank you so much !!

All I can do is wait until I see my doc

I can assure everyone that I would NEVER be put on methadone!

Always had been able to get off the Da's on my own...difficult but doable (all in time )

I never took this much Ropinirole Always used the Mirapex before and I would have to go back in my *Discussion Board here* to view the amounts

Oceanwalker


Marie

badnights
Moderator
Posts: 5186
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Augmentation again (of course)

Postby badnights » Fri Apr 19, 2019 6:47 am

oceanwalker wrote:going on a mild opiod for a bit for help in withdrawing from the Ropinirole ..they just would not do this here in Canada with what's going on with opiod addiction etc.
Didn't notice this thread earlier - sorry! It is certainly possible to get a regular prescription of opioids in Canada but from place to place it differs depending on what kind of doctors you have available. I live in the NWT, pretty remote, yet my regular GP here specializes in opioid medications; and she refers me now and again to a specialist in Edmonton, who has no compunctions about recommending opioid prescriptions to referring doctors.

Most doctors are not well-informed about WED/RLS, though. You might want to print off the latest Medical Bulletin that the Foundation puts out (see the link in my signature block), and highlight the relevant parts, then bring it to your next appointment. First be sure to describe how your symptoms are impacting your life, because we tend to assume a doctor will know, but most don't. Tell him/her you're too tired to do your job properly, that you can't accept invitations to social engagements because you're too tired all the time, that you can't sit still in meetings and it's affecting your boss's view of you - whatever is true for you. Then - after describing the impact - say you need a better solution, make clear he/she knows that's your desired outcome from this visit. Then give him the printout and tell him you understand that the publishers are one of the most trusted sources of information on RLS/WED - and could he please look at page whatever.

I hope this advice is completely unnecessary because you have, in the long time it took me to see your comments, gotten past the augmentation and withdrawal :) I hope
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

oceanwalker
Posts: 109
Joined: Fri Aug 23, 2013 12:02 pm
Location: Canada

Re: Augmentation again (of course)

Postby oceanwalker » Fri Apr 19, 2019 4:57 pm

Hello Beth and many thanks for all your important information !!!

I will look over all of this !!
...will get back to you

Sincerely,
Oceanwalker (Marie)

oceanwalker
Posts: 109
Joined: Fri Aug 23, 2013 12:02 pm
Location: Canada

Re: Augmentation again (of course)

Postby oceanwalker » Thu Jun 13, 2019 11:29 pm

Well ( *sighs ) back to the long haul of coming off the Ropinirole
Went down to 4/day of 0.25 All seemed OK and then after a long while..poof it became worse again :(
I didn't want to but I did go back to 5/day of 0.25
It's been a Horror Show but I guess this happens on occasion
No doc listens to me and I don't know what to do
I have a few (not enough) Emtec to carry me through this process but not going to work

Going back to the doc when I can get it

But I was on 8/day of 0.25

Take care !
Marie

ViewsAskew
Moderator
Posts: 15602
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Augmentation again (of course)

Postby ViewsAskew » Fri Jun 14, 2019 4:58 am

oceanwalker wrote:Well ( *sighs ) back to the long haul of coming off the Ropinirole
Went down to 4/day of 0.25 All seemed OK and then after a long while..poof it became worse again :(
I didn't want to but I did go back to 5/day of 0.25
It's been a Horror Show but I guess this happens on occasion
No doc listens to me and I don't know what to do
I have a few (not enough) Emtec to carry me through this process but not going to work

Going back to the doc when I can get it

But I was on 8/day of 0.25

Take care !
Marie


:cry: :cry: :cry:
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

oceanwalker
Posts: 109
Joined: Fri Aug 23, 2013 12:02 pm
Location: Canada

Re: Augmentation again (of course)

Postby oceanwalker » Fri Jun 14, 2019 8:05 am

Hi again
Here's a breakdown of my Hematology panel
Hemoglobin 129, ( Iron 17) Iron Binding (73) Iron Saturation (0.23) Ferritin (59) Am I missing anything ? [could have shared this before?]

Thanks ! for all of your help Marie Oceanwalker


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