IRLSSG Augmentation Paper - August 2015

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Rustsmith
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IRLSSG Augmentation Paper - August 2015

Postby Rustsmith » Sat Sep 26, 2015 8:26 pm

The IRLSSG published a white paper on the prevention and treatment of Augmentation last month.

http://irlssg.org/wp-content/uploads/2015/05/Summary-of-recommendations-RLS-Augmentation-13Aug2015.pdf

The paper discusses levels of augmentation, the selection of various treatment schemes depending upon severity of RLS symptoms to prevent augmentation and recommends various adjustments to treatments following augmentation depending upon the current treatment and the severity of the augmentation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Re: IRLSSG Augmentation Paper - August 2015

Postby badnights » Sun Oct 04, 2015 9:45 am

They suggest use of opioids only in "very severe" augmentation which they describe as "almost 24 hr". I'd like to see one of them tolerate even 12 hr daily of augmentation without an opioid. Actually, I'd like all of them to do it - and then be offered a chance to re-write, with their new-found knowledge.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

ViewsAskew
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Re: IRLSSG Augmentation Paper - August 2015

Postby ViewsAskew » Sun Oct 04, 2015 3:42 pm

badnights wrote:They suggest use of opioids only in "very severe" augmentation which they describe as "almost 24 hr". I'd like to see one of them tolerate even 12 hr daily of augmentation without an opioid. Actually, I'd like all of them to do it - and then be offered a chance to re-write, with their new-found knowledge.


Agreed!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Re: IRLSSG Augmentation Paper - August 2015

Postby Polar Bear » Sun Oct 04, 2015 6:32 pm

Also agreed !!
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
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Re: IRLSSG Augmentation Paper - August 2015

Postby Rustsmith » Sun Oct 04, 2015 7:46 pm

I wouldn't wish this on anyone. However, there should be a requirement that a physician who treats RLS patients should occasionally have to spend a night following a patient with severe RLS to at least observe what we go through. No fair slipping away for any reason other than restroom breaks. And the patient has the right to wake the doctor at any time if they try to take a nap at 2A. I would be more than happy to occasionally provide one of them with that sort of harrasment. :D
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Re: IRLSSG Augmentation Paper - August 2015

Postby Polar Bear » Sun Oct 04, 2015 9:53 pm

What an excellent idea.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
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Re: IRLSSG Augmentation Paper - August 2015

Postby badnights » Thu Oct 08, 2015 2:27 am

I'll volunteer!
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

degan
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Re: IRLSSG Augmentation Paper - August 2015

Postby degan » Fri Jun 24, 2016 3:24 am

Great that this was published - wonder if my Neurologist received a copy?

The paper refers to a 'maximum recommended dosage' but does not provide the actual amounts. Is the maximum dose for Ropinirole still 4mg?

ViewsAskew
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Re: IRLSSG Augmentation Paper - August 2015

Postby ViewsAskew » Fri Jun 24, 2016 7:47 am

degan wrote:Great that this was published - wonder if my Neurologist received a copy?

The paper refers to a 'maximum recommended dosage' but does not provide the actual amounts. Is the maximum dose for Ropinirole still 4mg?


It is and it isn't. The FDA didn't change their guidelines, but several RLS specialists have changed their minds. I have taken all my meds, however, and I cannot remember what it is! 1 mg seems right...but don't count on it (sorry!).
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Re: IRLSSG Augmentation Paper - August 2015

Postby badnights » Fri Jun 24, 2016 8:00 am

The link in my signature will take you to a page that lists a number of downloads. The Buchfuhrer 2012 download is one of the papers by a specialist that makes the lower recommendations for RLS/WED patients (it used to be that we were assumed to be ok with the doses given to Parkinsons patients). p780. ropinirole 1 mg, pramipexole 0.25 mg.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice


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