Pregnancy Journal

RLS/WED occurs more frequently in certain populations, including people with end-stage renal disease, women during pregnancy, and people with iron deficiency. Also, RLS/WED in the elderly and children brings other challenges. Sharing your experiences may be extraordinarily helpful to others.
Polar Bear
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Postby Polar Bear » Thu Nov 10, 2011 10:08 am

Woooowww !! that's tomorrow, Friday.
What a wonderful journey. :)
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

sarahjj
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Postby sarahjj » Sat Nov 19, 2011 1:42 am

Hello Friends! I'm happy to announce that Baby Jacob was born on 11/11/11 at 8:42am via C-section. He was 7lbs even and 19" long. He is a beautiful baby boy and we are beside ourselves with joy.

He was born at 37 weeks and altho his apgar scores were very good, about 20 minutes after he was born, he began to turn blue. He was taken to the NICU, given oxygen and diagnosed as having Respiratory Lung Disease. All that was a scary way of saying that his lungs were not quite fully developed and he needed some assistance while they matured. He has been in the NICU for the past week and is scheduled to come home on Sunday. On the day he was born, they gave him a treatment of Surfactant to make his lungs softer and more flexible. Since then, he was on a feeding tube, a cpap machine, oxygen, IV antibiotics and miscellaneous other things. For the first 2 days I couldn't even see what he looked like for all the tubes and wires covering his face. As of today, everything has been removed and he is under watch for the next 24 hours to make sure he can hold his own. If all goes well, Jacob will finally come home on Sunday. Its been a long, hard and stressful week.

Because I am on Methodone for RLS, they have been evaluating Jacob every 6 hours for possible withdrawl symptoms. He has had ZERO withdrawl symptoms. The very best thing I did in this pregnancy was switch to Methodone. My symptoms continue to be under control 100%.
While in the hospital, I never felt judged for taking methodone. It was an excellent experience.

Thanks everyone, for your encouragement throughout this whole pregnancy. I won't be doing it again! But it was a great experience, thanks to great doctors who knew what they were doing and the encouragement from all of you. Jacob is a healthy baby boy with zero abnormalities, diseases, or challenges. We are very blessed and are looking forward to having him home with us.
~Sarah~

Polar Bear
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Postby Polar Bear » Sat Nov 19, 2011 2:31 am

Wonderful. Welcome Jacob.
Such a blessed time.
Congratulations to you and your happy family.

And excellent that your WED/RLS was under control.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Postby ViewsAskew » Sat Nov 19, 2011 3:39 am

That must have been so scary. Glad he's coming home and that all is well now.

Be happy together.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Betty/WV
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Postby Betty/WV » Sat Nov 19, 2011 4:37 am

Welcome to little Jacob. Glad you are all ok. Wish you lots of happiness with your little one.

BETTY/WV
Thanks to rls.org, I have learned so much about my condition. I have received encouragement from my friends here. This is a site I can come to when I am up most of the night, and I vent, and know those who read my messages understand

Laurachrissy
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Postby Laurachrissy » Sat Nov 19, 2011 7:01 am

Awwwww, I know u can't wait to have Lil' Jacob home and all 2 urself. So glad everyone did a gr8 job; esp. the new mommy ...Enjoy and Congrats.
RLS sux

Chipmunk
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Postby Chipmunk » Sat Nov 19, 2011 5:39 pm

Welcome to the world baby Jacob! Congrats Mommy!
Tracy

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the WED/RLS Foundation, and are not medical advice.

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fraujoolie
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Postby fraujoolie » Sat Nov 19, 2011 6:13 pm

Congratulations!!! I am glad everything is okay with his lungs now. What a scary experience. I saw your pictures on FB, what a cutie! And I saw that he was in the NICU, I was concerned. I wasn't sure if it was from the Methadone, or from something else. Now I know... and I'm sorry he was having breathing troubles. What a relief to not have any NAS from the Methadone. What dose were you on at delivery? I think knowing this might be helpful to other mothers who may end up on this path.

So happy for you and your family! Good luck with everything, and I hope you soak up every second! They grow up so fast...
Julie

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Neco
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Postby Neco » Tue Nov 22, 2011 4:39 pm

I'm glad everything went well for you. Glad you got to keep your RLS under control with the Methadone as well.

sarahjj
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Postby sarahjj » Sat Dec 03, 2011 5:55 am

A few lessons I learned during this ordeal of treating RLS while pregnant:

1. Methodone was the best choice I could have made to treat my RLS during pregnancy. It covered my symptoms 100%.

2. As long as I stayed under 40mg/day, my baby would have little to no chance of having withdrawl issues right after birth. I was taking 20mg at the time of birth. They tested my baby every 6 hours for signs of withdrawl and he was negative every time.

3. I can remain on methodone while breastfeeding because the baby gets less than half of 1% of my dose of methodone through the breast milk.

4. And there was never a threat of being visited by children's services because of the medication. The hospital staff was very knowledgable about methodone and no one treated me poorly because of it.

5. When I was on Oxycodone during the first 6 months, it was because my RLS doc was nervous to switch to methodone. The Oxy didn't cover my symptoms very well at all. In order to convince my RLS doc to make the switch, I had her consult with my preggo docs. That was the ticket.

6. Throughout the pregnancy, I consulted with Dr. B via email. He proved to be invaluable.

I really hope this helps the next person who has to handle being pregnant while being treated for RLS. The information that is out there is so sparse that I hope a first hand account of my experience is helpful. :lol:
~Sarah~

Polar Bear
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Postby Polar Bear » Sat Dec 03, 2011 2:54 pm

You had a wonderful ending to your journey through pregnancy.

Thank you for your concise post which will be so reassuring to others who find themselves in a similar position.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Chipmunk
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Postby Chipmunk » Sat Dec 03, 2011 5:46 pm

Thank you for sharing what you have learned - I'm sure it will be quite valuable for people in the future!
Tracy

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the WED/RLS Foundation, and are not medical advice.

ViewsAskew
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Re: Pregnancy Journal

Postby ViewsAskew » Sun Nov 30, 2014 6:27 am

This was an excellent journal and explains much of what a women must go through when pregnant and dealing with WED.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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