hi all
wanted to check in if anyone has had any temp side effects from IV iron? i have had 3 infusions since 2016 but noticed some similar side effects on my 2nd and 3rd one. wasn't sure if that's just a coincidence or?
thanks for sharing any experience!
side effects of iv iron
-
- Moderator
- Posts: 16602
- Joined: Thu Oct 28, 2004 6:37 am
- Location: Los Angeles
Re: side effects of iv iron
Immediately (during?) or over time?
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Re: side effects of iv iron
post. my sleep and energy level improvement starts kicking in ard 4-5 weeks; but i also start to experience for about 2 weeks or so of excessive internal agitation/energy that i need to get rid of ard week 6-8 post iv (but ends up in me losing my temper mainly )ViewsAskew wrote:Immediately (during?) or over time?
just wondering if that is just me.....
Re: side effects of iv iron
I just posted my IV iron injection additional effects in the Injectafer thread. Click here if you want to see them.
http://bb.rls.org/viewtopic.php?f=4&t=1 ... 59#p100359
http://bb.rls.org/viewtopic.php?f=4&t=1 ... 59#p100359
Blessings,
Holland
Holland
-
- Moderator
- Posts: 6259
- Joined: Tue Mar 10, 2009 4:20 pm
- Location: Northwest Territories, Canada
Re: side effects of iv iron
I've only had one infusion so far and have not noticed any effects other than improvement in symptoms and attendant reduction in meds, better sleep, and more alert during the day. I thought my depression was lifting, too, but I think that's a side effect of sleeping better. It's come back twice for short visits, at least once (today) because I've been working too-long hours and didn't sleep enuf last night.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
-
- Posts: 13
- Joined: Fri Nov 15, 2019 11:07 pm
Re: side effects of iv iron
Where can you get iron infusions?
Re: side effects of iv iron
Mostly people get IV Iron by educating their GP or Neurologist (usually by you informing the doc that IV Iron is now considered a first priority treatment for RLS and giving the doc a copy of the guidelines). Once the GP/Neuro is considering IV Iron reasonable, he or she refers you to a hematologist, who then must be persuaded that IV Iron is indicated. The hematologist orders the IV Iron to be given, most commonly at an IV Infusion center (where IV antibiotics and cancer drugs are the most commonly administered IV medications). Unfortunately this complex routine can be stopped by the docs at multiple stages. This is the way it is usually given in USA. If a GP was willing, any GP in USA can give it in the regular office exam room if the doc was willing. Most aren't.
There are two ways to make it simpler. 1) Get treated at an RLS Quality Care Center. 2) Find another patient who has had IV Iron for RLS and go to that doc.
There are two ways to make it simpler. 1) Get treated at an RLS Quality Care Center. 2) Find another patient who has had IV Iron for RLS and go to that doc.
Blessings,
Holland
Holland