Restless Legs Syndrome (RLS) Discussion Board

Penguin, that must be so frustrating, though. It is great that they are listening (and how horrible if they weren't???), but you (and Jannie, too), have really had a tough time finding something that really works. I know how hard it is to "just" have the creepy feelings for days on end, but pain that won't go away, horrible side affects, etc? That really sucks. I really hope they can find something, and soon.

Ann

Thanks Ann.

It's getting very old feeling like this....

Good night

Love you
Penguin

Don't have the chance to get here very often. ALWAYS find something helpful! You have no idea how much the little you give here affects someone else in a positive way..............THANK YOU!

Was on Permax for 6 - 7 years. Tried Requip....augmentation to the point that it was extremely unsafe for me to even drive. Am on Mirapex now and it is doing the job. Am a very active 65, but realize that the time is getting closer when I may possibly face the nightmare of immobility, for whatever reason.

Can anyone help me in this area? My doc does his best to help but is a neuro who also does research with MS & other illnesses, so his primary allegance is to those topics. It seems I have read in other places here of information for the docs, from patients, that can be printed and given to your doc. There is so much info here, it is hard to know where to look.

My initial question was about aqua therapy.......but got side-tracked. How is it different than other water therapy, a hot tub (hubby will get one if it will actually help)?

Again.THANKS!!!

Hi Susie

Where I live, aqua therapy refers to water aerobics. The pool is kept very warm (I don't remember the exact temperature) and there are a series of workouts we do in the water---a different one everyday, and repeated every week.

Jan3213

Hi Susie. Glad you find something worthwhile here. Yes, there are many posts so it can be difficult to find what you want. The search function can help if you know a specific term to look for, but not if you don't!

We did create some sticky posts in many of the topics. For example, in the New To RLS section, there are two stickies that provide links to many of our most informational posts or to other websites to help. These are a great place to start. There are many links in the following post (and the other sticky) to sites with information that can be printed and taken to your doctor.

http://bb.rls.org/viewtopic.php?t=1068

Mirapex may work for a long time. One thing that some people really finds can extend how long a drug works is to take regular holidays or breaks from it. For example, as soon as the Mirapex seems to be losing effectiveness, or you need to take it earlier, take Requip, an opioid, or Permax, or whatever else works for about 2 weeks. Then go back on your original dose of Mirapex. People who do this can go years on a drug without augmentation or tolerance.

Hope that helps some. Glad you joined; hope to see you around again soon.

Ann

I'm still new to this site, so hope I'm doing this right. This string of postings seemed to go off in different directions. Anyway, I'm glad someone brought up the importance of family letting healthcare providers know about a patient's RLS. When in the ER a few years ago, I received IV Phenergan for nausea, and within minutes was literally writhing, and some stupid nurse told me that it wasn't the drug causing my problem; I got a Dr. to listen to me and give me a big dose of Valium which put me out of my misery. I now know many anti-nausea drugs can do this. I will definitely talk to my husband and family about this in case I'm ever in a situation where I can't speak for myself. Thanks for the wake-up call. What other drugs do this?