Restless Legs Syndrome (RLS) Discussion Board

I only know my feritin was 34 which was done 2 weeks ago ... I will be seeing Dr. P. At the end of the month and as about the transferritin....

Ya, that';s pretty low. The only way for me to get low enough for them to approve a transfusion is to stop taking iron for a few months. I'm not doing that. I would lose the quality of life I so recently regained.

Keep us posted about your progress in this treatment!

I totally understand about not wanting to change what you are doing right now with your treatment ....I think this disease is so individualized and each one of us tweaks a med to what fits our needs and if what you are doing works then don't change it...and yes I will keep posting my journey ... stay healthy and carry on!