Pending Opioid Withdrawal?

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
leggo_my_legs
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Joined: Sun Oct 16, 2016 12:29 am

Pending Opioid Withdrawal?

Postby leggo_my_legs » Sun Dec 03, 2017 7:59 am

Well I really dislike these pharmacy rules of not refilling until 2 days before I'm due. Doesn't allow for any time for MD missing refill request etc.

Pharmacy doesn't keep oxycodone in stock either. So I'm looking at going without for a few days. I'm hoping I haven't been on it long enough for withdrawal to be an issue. On it for 30 days.

Rustsmith
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Re: Pending Opioid Withdrawal?

Postby Rustsmith » Sun Dec 03, 2017 2:28 pm

This is part of the reason why I have gone exclusively to a mail order pharmacy. And I have slowly developed a stash by getting them just a few days early each time.

As for their 2 day rule, they assume that you are at home all the time. Their rule doesn't allow for things like vacations and business travel.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Re: Pending Opioid Withdrawal?

Postby Polar Bear » Sun Dec 03, 2017 6:25 pm

I am so glad that my GP is cooperative. He will work with me if i'm going on holiday, i.e. hand write the prescription.
The computer software may not print the script within a certain timescale.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

leggo_my_legs
Posts: 307
Joined: Sun Oct 16, 2016 12:29 am

Re: Pending Opioid Withdrawal?

Postby leggo_my_legs » Mon Dec 04, 2017 4:24 am

Rustsmith wrote:This is part of the reason why I have gone exclusively to a mail order pharmacy. And I have slowly developed a stash by getting them just a few days early each time.


We can't get them via mail order in CA I don't think. Good for you re the stash!

Apparently the mixup was the office person not responding to my email or something. Dr told me to call Monday. Perhaps she has already called it in to the pharmacy and I just haven't heard from them. I'll find out soon.

Meanwhile I am talking 1/4 of my usual dose but will still run out in 2 days at this rate.

Polar Bear, that is good of your GP to work with you in that way. I would have thought of bringing along but not bringing along rx...good idea. But of course here than you get flak for using different pharmacies etc.

ViewsAskew
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Re: Pending Opioid Withdrawal?

Postby ViewsAskew » Mon Dec 04, 2017 6:39 pm

My pharmacy always has to order - always screws me up. No mail order in IL or in CA to my knowledge.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
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Re: Pending Opioid Withdrawal?

Postby Rustsmith » Mon Dec 04, 2017 6:51 pm

Interesting that mail order is not available to everyone since it is essentially required by the health insurance provided by my former employer, who has a large number of employees in both IL and CA.

But I also admit to quite a bit of fear with my mail order access since CVS has recently bought their prescription management service and is in the process of buying the insurance company that manages my former employer's health insurance. (And for those not familiar with CVS, they are a giant pharmacy conglomerate that is on the leading edge of the opioid hysteria.)
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1852
Joined: Mon May 21, 2012 3:27 pm

Re: Pending Opioid Withdrawal?

Postby debbluebird » Tue Dec 05, 2017 12:16 am

Another thing that my Doctor has done for me, one month she will write a greater amount than I take, that way I have a stash for when the end of the month comes, I'm safe, but I can not take the extras at other times, even when I am tempted. She doesn't do it unless I have used up the extras.

2BassetMom
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Joined: Mon Mar 30, 2015 7:06 am
Location: Idaho

Re: Pending Opioid Withdrawal?

Postby 2BassetMom » Wed Dec 06, 2017 6:11 am

I massaged my PA that I had so many pills left and that I was ready for my next prescription. This was on Monday. I have one pill to get me through the night and tomorrow until she might electronically send it to my pharmacy. Hopefully she is acting on this. Last refill, I had to re-message and remind her. We'll see what tomorrow brings. We are so careful not to seem needy (which we are) for fear they will think we are abusive due to the opioid hysteria. It is a shame.

ViewsAskew
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Re: Pending Opioid Withdrawal?

Postby ViewsAskew » Wed Dec 06, 2017 7:14 am

2BassetMom wrote:I massaged my PA that I had so many pills left and that I was ready for my next prescription. This was on Monday. I have one pill to get me through the night and tomorrow until she might electronically send it to my pharmacy. Hopefully she is acting on this. Last refill, I had to re-message and remind her. We'll see what tomorrow brings. We are so careful not to seem needy (which we are) for fear they will think we are abusive due to the opioid hysteria. It is a shame.

:-(
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

leggo_my_legs
Posts: 307
Joined: Sun Oct 16, 2016 12:29 am

Re: Pending Opioid Withdrawal?

Postby leggo_my_legs » Mon Dec 18, 2017 8:11 am

Rustsmith wrote:Interesting that mail order is not available to everyone since it is essentially required by the health insurance provided by my former employer, who has a large number of employees in both IL and CA.

But I also admit to quite a bit of fear with my mail order access since CVS has recently bought their prescription management service and is in the process of buying the insurance company that manages my former employer's health insurance. (And for those not familiar with CVS, they are a giant pharmacy conglomerate that is on the leading edge of the opioid hysteria.)


Can't get controlled rxs in CA via mail order, but can get other meds via mail order. I can't stand CVS. I am required to use them by my ins company, or suffer financial penalties. I was going to the CVS in Target, and they were quite awful. Thankfully I found a better one, and it has a drive thru.

By the way, my rationing worked and I didn't have any withdrawals, and I got the meds "just in time" as the pharmacy requires. The pharmacy robocall didn't call me and tell me it was ready; apparently it was sitting on the shelf for a day, which ticked me off.

Polar Bear
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Re: Pending Opioid Withdrawal?

Postby Polar Bear » Mon Dec 18, 2017 4:07 pm

leggo - that is sloppy customer service from the pharmacy.
I guess they reckon that we need our medication and they don't have to bother letting us know when it is available..... that we will ourselves be checking.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

EdSoFlo
Posts: 20
Joined: Tue Jan 06, 2015 4:44 am

Re: Pending Opioid Withdrawal?

Postby EdSoFlo » Thu Dec 21, 2017 1:49 pm

2BassetMom wrote:I massaged my PA that I had so many pills left and that I was ready for my next prescription. This was on Monday. I have one pill to get me through the night and tomorrow until she might electronically send it to my pharmacy. Hopefully she is acting on this. Last refill, I had to re-message and remind her. We'll see what tomorrow brings. We are so careful not to seem needy (which we are) for fear they will think we are abusive due to the opioid hysteria. It is a shame.


I could not agree more. I have been living in what seems live ground zero of opioid paranoia South Florida and while I feel very fortunate to have found a sleep specialist who will treat with oxycodone (as I had been on for six years in CA) filling the scripts it’s as if they presume you’re a junkie or drug dealer. I even had one probably 27 ish pharmacy tech lecture me that she’s never heard of opioids for RLS And wasn’t going to fill it. And I had to convince her otherwise. And yes I was desperate to have it filled because I know what it’s like to be jumping out of my skin at midnight, not because I was looking to down half the bottle and get high. Good grief. It’s a humiliation on top of having to live with RLS that is so ridiculous. Human beings internalize being culturally shamed and it can really mess with your mind. Luckily for me I’m able to always keep in mind I’m in the right and they are operating from ignorance so I don’t let it effect me too much. We have a culture of people and politicians that blame an inert substance - that when used correctly for its actual purpose is a life changing miracle for people - for the actions of people that abuse it. What’s so crazy is that as usual when politicians decide to ‘get tough’ and ‘do something ‘ they create more harm as in Florida making it so hard to prescribe them the actual addicts turned to heroin on the street resulting in a terrible overdose situation. I’m lucky in that the pharmacy team changed at the CVS I use and they are now actually almost pleasant to me and treat me like a customer and a human being instead of a lowlife. The bad news is I’ve just moved which I’m going to do a separate post on.

ViewsAskew
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Location: Chicago

Re: Pending Opioid Withdrawal?

Postby ViewsAskew » Thu Dec 21, 2017 7:50 pm

In case any of you haven't seen it, there is the new study that hopefully will help normalize opioid use for RLS. It is featured in this month's Nighwalkers and I believe Rustsmith posted on it a week or so ago. I joined and have had my initial interview. Sounds like they have had a good response, but more cannot hurt!
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Posts: 7222
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Pending Opioid Withdrawal?

Postby Polar Bear » Fri Dec 22, 2017 12:35 am

Thank you Ann, thank you for joining. Isn't it wonderful that they have had a good response.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation


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