Dr C talked about how sleep gets disturbed by rls, then gets disturbed more until eventally it has its own entity separate from the original rls disturbances and is Insomnia as a separate condtion.
This is an old theory about WED/RLS and insomnia that is still bandied about - more or less that the insomnia is a bad habit developed from years of WED/RLS. I think it is becoming clearer now that the insomnia associated with WED/RLS is a different beast altogether - Holland said something about this recently that I liked. EDIT Mar 16: Here: viewtopic.php?p=101755#p101755
Thing is I'd told my various GPs so many times about broken sleep and waking up gasping and the gasping wasn't taken on board
I wish I could make that sort fo problem go away. No matter how hard I try to be comprehensive yet concise, and regardless of the fact that my GP doesn't rush me and is kind and caring, I still end up hearing things from her that make me realize she has missed a key point. Example: she thought I took extra hydromorphone when I couldn't sleep. NO! It's when my symptoms are bad. Turns out she doesn't know what I mean by "symptoms". (How can you treat me for a decade and not know what the living hell of my symptoms is like? Probably because I have assumed that you know...)
My insurance just covers consultations and tests up to a certain limit. For any treatment it's back to the NHS.
Sell the house if you have to.
I'm so happy your neuro was good! and don't feel ashamed that you recall him as unhelpful - he probably changed a lot in 12 years