Methadone was working, now it's not
Posted: Fri Jun 08, 2018 11:42 pm
Thank you in advance for any input.
My local sleep doc had me on 6 different meds for RLS, including more than 9 mg of Dopamine Agonists. I was averaging 0-3 hours of sleep/night, the remaining hours were spent pacing, jogging, and riding my exercise bike. I ended up at Johns Hopkins, that doctor took me off all the medications I was on, one at a time, followed by a drug holiday, before starting on Methadone. My second night on 2.5 mg of Methadone, I fell asleep while standing up and fell over backwards, cracking my head open and breaking my ankle in 3 places. I was gradually able to increase the dose of Methadone until I found a therapeutic dose at 7.5 mg. for a week.Then I reluctantly went to 10. It was so excellent! I slept all night but was SO sleepy the next day. Then it stopped working at night again, and I was still sleepy all day. (all of this was while I was on varying doses of Gabapentin...900-1800.) I currently take 15 mg Methadone at 5pm, 600 mg Gabapentin about 8, and 300 mg Gabapentin about 10 pm. Does anyone have any experience with this type of situation or results? I almost fell asleep while standing up again last night, but caught myself before getting hurt. I'm terrified of having another serious accident.
My local sleep doc had me on 6 different meds for RLS, including more than 9 mg of Dopamine Agonists. I was averaging 0-3 hours of sleep/night, the remaining hours were spent pacing, jogging, and riding my exercise bike. I ended up at Johns Hopkins, that doctor took me off all the medications I was on, one at a time, followed by a drug holiday, before starting on Methadone. My second night on 2.5 mg of Methadone, I fell asleep while standing up and fell over backwards, cracking my head open and breaking my ankle in 3 places. I was gradually able to increase the dose of Methadone until I found a therapeutic dose at 7.5 mg. for a week.Then I reluctantly went to 10. It was so excellent! I slept all night but was SO sleepy the next day. Then it stopped working at night again, and I was still sleepy all day. (all of this was while I was on varying doses of Gabapentin...900-1800.) I currently take 15 mg Methadone at 5pm, 600 mg Gabapentin about 8, and 300 mg Gabapentin about 10 pm. Does anyone have any experience with this type of situation or results? I almost fell asleep while standing up again last night, but caught myself before getting hurt. I'm terrified of having another serious accident.