Meds, ferritin, supplements, mthfr, etc
Posted: Sun Jun 24, 2018 5:56 pm
I need so much help!
RLS was my first disease, not nearly my last, starting when I was a toddler; I am 57 and RLS became a permanent fixture at 30 yrs.
I currently take Horizant 600 mgs, requip 3 mgs, Amytriptyline 75 mgs (for SFN, small fiber neuro), lamotrigine 150 mg (divided, also for SFN), oxycodone 20 mgs
plus other meds for Sjogrens, gastroparesis, raynauds, rheumatoid disease, vasculitis, tinnitus, daily migraine syndrome, endocrine disease (hypothyroidism, hypo pituitary, adrenal fatigue)
I started seeing a naturopath in Jan and he did a ton of bloodwork (23 vials) and found several issues (iron levels fine, but ferritin at 39, mthfr mutation, folate anemia, b12 pooling, are most relevant here). His focus has been endocrine diseases and he wants me OFF of opioids so I can start on LDN (low dose naltrexone) to treat those. I also started on methylated B vitamins and ProFErritin (was ferrous 325 since Jan, the switch was made because a thyroid group recommends this heme version, esp because of the mthfr) and several others.
My RLS is unbearable and I think there are at least two causes:
1) Augmentation on requip over 1 mg. I have symptoms all day and in arms, neck and shoulders.
2) lowering of opioids (65 mg per day between oxycodone 40 mgs and oxycontin 20mgs -- down to 20 mgs oxycodone currently). I added CBD oil (no thc) to assist with pain levels. I am supposed to be 0 mgs opiods 2 weeks from now.
Should I drop to 1 mg requip immediately or no requip. If no requip should that be cold Turkey?? Would i return to requip after a holiday? I've been on requip for many, many years and horizant for about 2 years.
If i reduce or stop requip would i add something else, or just stay on the horizant??
Should i do iron infusions, any one find this helpful? How much was infused, how often??
Actually all advice & ideas welcome as I'm not sure what questions to even ask. I'm reading all the posts i can, but there is so much info here I'm overwhelmed..
Thank you, thank you,
Shari, sleepless in Phoenix
RLS was my first disease, not nearly my last, starting when I was a toddler; I am 57 and RLS became a permanent fixture at 30 yrs.
I currently take Horizant 600 mgs, requip 3 mgs, Amytriptyline 75 mgs (for SFN, small fiber neuro), lamotrigine 150 mg (divided, also for SFN), oxycodone 20 mgs
plus other meds for Sjogrens, gastroparesis, raynauds, rheumatoid disease, vasculitis, tinnitus, daily migraine syndrome, endocrine disease (hypothyroidism, hypo pituitary, adrenal fatigue)
I started seeing a naturopath in Jan and he did a ton of bloodwork (23 vials) and found several issues (iron levels fine, but ferritin at 39, mthfr mutation, folate anemia, b12 pooling, are most relevant here). His focus has been endocrine diseases and he wants me OFF of opioids so I can start on LDN (low dose naltrexone) to treat those. I also started on methylated B vitamins and ProFErritin (was ferrous 325 since Jan, the switch was made because a thyroid group recommends this heme version, esp because of the mthfr) and several others.
My RLS is unbearable and I think there are at least two causes:
1) Augmentation on requip over 1 mg. I have symptoms all day and in arms, neck and shoulders.
2) lowering of opioids (65 mg per day between oxycodone 40 mgs and oxycontin 20mgs -- down to 20 mgs oxycodone currently). I added CBD oil (no thc) to assist with pain levels. I am supposed to be 0 mgs opiods 2 weeks from now.
Should I drop to 1 mg requip immediately or no requip. If no requip should that be cold Turkey?? Would i return to requip after a holiday? I've been on requip for many, many years and horizant for about 2 years.
If i reduce or stop requip would i add something else, or just stay on the horizant??
Should i do iron infusions, any one find this helpful? How much was infused, how often??
Actually all advice & ideas welcome as I'm not sure what questions to even ask. I'm reading all the posts i can, but there is so much info here I'm overwhelmed..
Thank you, thank you,
Shari, sleepless in Phoenix