I've been taking 0.125 mg of pramipexole for restless legs for about 7 years. I take it intermittently as needed to control symptoms, but not on a daily basis. I have not experienced augmentation and still obtain relief with the same dose as I started with.
Ferritin level is at its highest level- 98 I take an 18 mg daily iron supplement.
I used to be a regular, every-two-months blood donor, but in the past seven years I have limited donations to 2 or 3 a year. This last year I have not donated due to an issue that made me ineligible for a year.
I exercise regularly, including stationary biking, which seems to help in subtle ways to reduce restless legs.
I'm in good health, except for the normal changes that occur with aging (I'll be 70 next month)
Personal Update
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Re: Personal Update
Glad to hear things are going well for you. Taking the pramipexole as you are likely will allow you to take it for many more years without issue.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Re: Personal Update
Thanks for your response, Ann. I hope you are right about the pramipexole
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Re: Personal Update
It’s great to read of people who manage to control the dopamine agonist rather than it controlling them. You give me hope that I may manage to keep a low dose of pramipexole as part of my armory for some time to come. Thank you for posting.
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Re: Personal Update
TimG - good to hear from you again. It's wonderful that you're doing so well.
Don't you think you should stay away from blood donation? It's known to make WED/RLS worse, and you now have some evidence that it has been making yours worse: the fact that your ferritin is higher than it has ever been after a year of not donating. 98 is quite possibly not high enough for you. If you could get it higher, you might eliminate the need for pramipexole - and the associated dangers - altogether.
Anyway, I'm happy that you are managing so well. It's so nice to hear stories that give us hope.
Don't you think you should stay away from blood donation? It's known to make WED/RLS worse, and you now have some evidence that it has been making yours worse: the fact that your ferritin is higher than it has ever been after a year of not donating. 98 is quite possibly not high enough for you. If you could get it higher, you might eliminate the need for pramipexole - and the associated dangers - altogether.
Anyway, I'm happy that you are managing so well. It's so nice to hear stories that give us hope.
Beth - Wishing you a restful sleep tonight
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Re: Personal Update
Beth--Thanks for your reply and helpful suggestions. Yes, you are right that I should give up blood donation, based on my experience of a year without doing so. And thanks for your advice about further increasing ferritin to eliminate the need for pramipexole.