Lyrica Cocktail

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Stainless
Posts: 127
Joined: Tue Dec 01, 2015 9:30 pm

Lyrica Cocktail

Postby Stainless » Sun Mar 10, 2019 11:10 am

I started Lyrica four weeks ago as an afterthought phone prescription because the Neupro that my neurologist prescribed cost $800 a month out of pocket. I can't even remember Lyrica ever coming up with my GPs or neurologists and had a fear of the drug from the side effects listed in their ads.

This has been the best four weeks for my rls in decades. No daytime rls, only a little an hour before bedtime and fairly minimal side effects. I did get three all day low grade headaches, a week apart the first three weeks that lots of Advil could not alleviate. My PLMS that the neurologist thinks causes pain in my thighs is greatly reduced and the pain almost disappeared in days. Jury is still out on the neuropathy in my feet but it had been slowly getting better over the last year.

I'm on a cocktail of 2 mg clonazepam, 800 mg gabapentin and 1 mg Lyrica that together cost about $15 a month. I'm hoping I can reduce or eliminate one of these, probably the gabapentin because I know what stopping clonazepam is like. Been there.

I would not recommend this cocktail to anyone, it may be taking years off my life but I just hope it continues to work for me. It's been a long road.

I did not have much faith in the neurologist and think the Lyrica prescription was a hail Mary pass, but living without rls and pain is awesome. I've been on just about everything else except opioids and Neupro. I see him in a few days and I will be interested in his feedback.

Is anyone else out there fighting this disease with Lyrica? Can you tell me the good, bad and ugly. Thx, Rick

ViewsAskew
Moderator
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Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Lyrica Cocktail

Postby ViewsAskew » Sun Mar 10, 2019 7:08 pm

Stainless, what happens when you increase the gabapentin? Lyrica is very similar - a sister-drug so to speak.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

stjohnh
Posts: 800
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Lyrica Cocktail

Postby stjohnh » Sun Mar 10, 2019 7:41 pm

Stainless wrote:I started Lyrica four weeks ago ...

This has been the best four weeks for my rls in decades. No daytime rls, only a little an hour before bedtime and fairly minimal side effects...


Yay!!
Blessings,
Holland

Stainless
Posts: 127
Joined: Tue Dec 01, 2015 9:30 pm

Re: Lyrica Cocktail

Postby Stainless » Mon Mar 11, 2019 11:23 am

Views, when the Neupro proved to be too expensive, I asked the neurologist's nurse and he said 800 mg was the max recommended. Previously I unintentionally took 2 pills a night for a week until I realized what I was doing and saw no improvement at all. The Lyrica worked in a day. I did not expect this to work.

I keep thinking I have side effects like muscle weakness and the headaches but they have seemed to resolved themselves. Another great night of sleep.

Yay!! indeed Holland

ViewsAskew
Moderator
Posts: 15604
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Lyrica Cocktail

Postby ViewsAskew » Mon Mar 11, 2019 10:28 pm

Fascinating...
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

PerrySmith
Posts: 2
Joined: Mon Jan 07, 2019 7:24 pm

Re: Lyrica Cocktail

Postby PerrySmith » Mon May 13, 2019 4:38 pm

RLS was going to put me in an early grave. It was a 24 hr affliction when I would sit or lay to relax. I had been on Ropinirole for over 15 years and it just kept getting worse. It was torture getting off Ropinirole!!! I found a new physician three months ago after joining this site and learning what Ropinirole was actually doing to my RLS. I am now on 200mg Lyrica. My RLS is totally gone during the day and seldom noticed in bed and when I do notice it I am able to ignore it.

badnights
Moderator
Posts: 5189
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Lyrica Cocktail

Postby badnights » Sat May 18, 2019 5:38 am

perrysmith wrote:RLS was going to put me in an early grave. It was a 24 hr affliction when I would sit or lay to relax. I had been on Ropinirole for over 15 years and it just kept getting worse. It was torture getting off Ropinirole!!! I found a new physician three months ago after joining this site and learning what Ropinirole was actually doing to my RLS. I am now on 200mg Lyrica. My RLS is totally gone during the day and seldom noticed in bed and when I do notice it I am able to ignore it.
Wow! From an augmented state - for years, undoubtedly - to being fully treated by 200 mg Lyrica alone. I didn't think anyone had that experience! I wondered if the anti-convulsants were useful at all, until someone here said she used nothing but gabapentin; and even then I thought no one who had augmented had had any success with them, yet here you are!
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

badnights
Moderator
Posts: 5189
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Lyrica Cocktail

Postby badnights » Sat May 18, 2019 5:39 am

Stainless wrote:I'm on a cocktail of 2 mg clonazepam, 800 mg gabapentin and 1 mg Lyrica
- how much Lyrica?
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.


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