chuas2 wrote:Thank you Beth. I appreciate the outrage, even if I truly wish that none of us had it. Yes, he said he had a lot of patients, NONE of whom complained of RLS. So off I go. He mentioned suboxone, and a place where you can do yoga, get acupuncture, and meditate, as if I could actually sit still long enough to do any of those things.
So based on the fact that he doesn't know anything about RLS, and that I don't have a diagnosis of cancer, I can "get along fine" without the very low dosages of opioids that I've been stable on for fifteen years or so.
I've been somewhat resistant, but am going the kratom route. Sigh...
He clearly has NO idea what RLS is. And, all too many of us end up with a doc like this. Here is my story for what it is worth...
I have seen about 20 of them over the years. Once I was forced to fly to Dr. Buchfuhrer because my doctor said he could no longer treat me, I was in such a better place. Yet, two years later, I STILL tried another local doc. She said she would work with him. She did...for awhile. But, she cut me off on a Friday afternoon, leaving me without anything. Thankfully I had small stash. Back to CA for a couple years. And, AGAIN, I tried a local doc. She was great for almost two years, but she went on maternity leave and her replacement? Let's just say it didn't go well. Every month I had to pay, out of pocket, for a full price visit - $130 at the time. After a few months, she brought a nurse in with her to "witness" the appt because she was going to cut me off, too, unless I agreed to start over with a sleep study, stop opioids, etc.
Back to CA I came. I still tried one more time - someone was raved about on here about how great the doctor was, so I made an appt. She didn't even understand the iron issue - was totally against infusions (this was 2014 or 2015) saying they would kill me. She was using data she likely learned in pre-med in 1990.
And, after that? I was done. Completely done. Never again will I go anywhere except a Quality Care Center if I can do anything to avoid it. I would move to a hovel to afford seeing someone at one of them - seriously. So, we moved to So Cal. I have spent thousands, literally, on doctors who do not get it, do not want to get it, and refuse to read about it, and more. And, the pain to my psyche? The lost sleep? The 15-20 drugs tried? Insanity.