Aimovig

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
jairalhill
Posts: 5
Joined: Thu Mar 07, 2019 11:30 pm

Aimovig

Postby jairalhill » Thu May 16, 2019 11:01 pm

This could be sheer coincidence, but it's sheer fortuitous. I was ready to go out of my mind. Full body RLS. I didn't know where to turn. Knew my GP didn't have a clue how to help. However, I suffer from chronic migraine as well so I think out of desperation in wanting to help me, he decided to try Aimovig for my migraines. So guess what. Not only have I found relief from my migraines, the RLS has settled down to just its normal, mildly irritating wiggles at night. Can anyone explain it? All I can say is HALLELUJAH!

stjohnh
Posts: 794
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Aimovig

Postby stjohnh » Fri May 17, 2019 2:20 am

Interesting if this is a real effect. Aimovig is a calcitonin gene-related peptide function inhibitor. Calcitonin gene-related peptide receptors are apparently found throughout the body, but mostly their function is unknown (other than related to migraine headaches). It is possible you have found a new physiologic path that RLS uses. Until today I'd never heard about this gene or the receptors.
Blessings,
Holland

ViewsAskew
Moderator
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Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Aimovig

Postby ViewsAskew » Fri May 17, 2019 3:57 am

Darn glad for you!!!!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Aimovig

Postby badnights » Sat May 18, 2019 6:11 am

@ jairalhill How long has it been working? Please keep updating us! If this effect lasts, it could be a new thing to try for many of us.

PS I'm going to move this Topic into the Prescription forum. A shadow topic will remain in Physical Treatments.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

jairalhill
Posts: 5
Joined: Thu Mar 07, 2019 11:30 pm

Re: Aimovig

Postby jairalhill » Sun May 19, 2019 5:19 am

Got my first Aimovig shot on May 1 so it's very early. But the effect on the RLS (and migraines) has been such a relief.

badnights
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Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Aimovig

Postby badnights » Tue May 21, 2019 6:52 am

Wild. Very encouraging. What is the dosing schedule? How many shots to go ? How far apart are they?
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

ViewsAskew
Moderator
Posts: 15599
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Aimovig

Postby ViewsAskew » Mon May 27, 2019 6:12 am

badnights wrote:Wild. Very encouraging. What is the dosing schedule? How many shots to go ? How far apart are they?


I can just see you sitting forward eagerly asking these questions, rapid-fire, lol.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 5179
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Aimovig

Postby badnights » Mon May 27, 2019 10:07 pm

lol. yes, I'm very curious to hear the answers!
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

jairalhill
Posts: 5
Joined: Thu Mar 07, 2019 11:30 pm

Re: Aimovig

Postby jairalhill » Wed Jun 19, 2019 2:53 am

The shots happen once a month, self-administered like an epipen-type injection. Two dosage amounts are available: 70 mg and 140 mg. I'm taking the 70 mg. It was interesting. Near the end of the first month, the migraines happened rapidfire and the RLS (really starting to dislike that name "leg" since it's more than the legs that are affected) got worse. The second dose of Aimovig settled the migraines down right away, and the RLS calmed down within a few days to its "normal" annoying hours instead of all day long. I'm hopeful. Let's see what Month Three brings. I think the manufacturers of Aimovig need to do a study for RLS sufferers. It's expensive stuff: $575/month, and insurance companies don't like paying for it.


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