Methadone in Florida?

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
mgm484
Posts: 1
Joined: Sun Jul 07, 2019 2:09 am

Methadone in Florida?

Postby mgm484 » Sun Jul 07, 2019 5:58 pm

Hello All,

I joined this form for this specific question as I have hit a roadblock in my own research. I am a 35 y/o male with debilitating RLS.

I lived in Connecticut for 10 years and was prescribed every class of medication indicated for RLS (dopamine agonists, anticonvulsants, benzos) with little success. Mirapex relieved my symptoms for a period of time but resulted in terrible augmentation that required me to take FMLA for joint pain, bruising, and insomnia. I found a wonderful doctor at the Yale Sleep Medicine center who prescribed me methadone which completely eliminated my symptoms. I have been taking this for nearly 3 years and it still works well.

I have moved to Florida and have had nothing but trouble finding a provider than understands RLS and methadone as an effective treatment for RLS. I finally saw a doctor in Orlando who stated basically methadone is the only thing that will help but he cannot prescribe it to me because opioids for chronic conditions have to be prescribed by a certified pain management physician. He referred me to someone but stated he is not hopeful as pain management doctors generally have little understanding of the condition and will not likely be open to methadone as a treatment. He told me to try Neupro patches but he stated that they will most likely be ineffective based upon the severity of my symptoms.

I am considering flying back to Connecticut every 6 months to see my doctor there if things don't work out here, but my concern is that problems may arise with prescribing opioids across state lines. In addition, it will be difficult to afford the trip and to take time off work. So, my question is:

Has anyone in Florida found success with a doctor who is willing and able to prescribe methadone for RLS? I am willing to drive as far as I need to. I live in Clermont, about 30 miles west of Orlando.

Thank you so much!

Rustsmith
Moderator
Posts: 4039
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: Methadone in Florida?

Postby Rustsmith » Sun Jul 07, 2019 6:26 pm

I cannot help you with a doctor in Florida since I live in the mountain west. But I can offer a couple of suggestions.

1. Print a copy of this paper and take it with you when you go to the pain management clinic. It might help explain to them why you need methadone. But don't be surprised if your doctor's warning holds true. Some of our members have had issues with pain doctors before. The paper can be found at: https://www.mayoclinicproceedings.org/article/S0025-6196(17)30825-X/fulltext

2. As for interstate prescriptions, if you do go back to Yale, you can send the prescription to a mail order pharmacy. My insurance requires me to use Express Scripts. It takes about 2 weeks to get a prescription filled, and I have never had an issue with them, even when I was taking methadone. My doctor would triple the dose on my prescription so that we would only have to get it filled once every quarter.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15704
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Methadone in Florida?

Postby ViewsAskew » Mon Jul 08, 2019 8:48 am

I received my script for years in the mail. I would call the CA doctor's office and they would FedEx it to me. I paid for and set up the FedEx pickup. I then filled it in Illinois.

I also know nothing about Florida. I do not recall anyone on here who is in Florida. You could try to search on the word Florida and see what comes up.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 5248
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Methadone in Florida?

Postby badnights » Tue Jul 09, 2019 5:28 am

I hope you can work something out. The situation is ridiculous but not the laughable kind of ridiculous. How important is your job ...
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Stainless
Posts: 135
Joined: Tue Dec 01, 2015 9:30 pm

Re: Methadone in Florida?

Postby Stainless » Sun Jul 14, 2019 4:36 pm

I'm a lifelong sufferer of severe RLS and resident of Fl. Almost every GP claims they treat RLS in their Bio but few to my experience know more than their computer tells them. DAs -> Extended release DAs -> Gabapentin -> Neupro. I looked all over the state for an expert and found a movement specialist (Parkinsons, etc) near you that claimed expertise at RLS. She didn't and I recently got a letter that she was changing her specialty.

Everything works for me for a week to a month and then back to suffering. I've been treated like a criminal just filling Clonazepam prescriptions for 25 years so I never bother to ask about methadone. Wife not big on trying it either. I'm about 2 hours from you on the east coast. Let us know if you have any success in Fl.

Interesting you mention joint pain. Shooting pain in my thighs and more recently hips is new over last few years scares the hell out of me. Neurologist thinks it is from PLMS. Maybe so but why never in morning and usually evenings and nights. Lyrica he put me on helps a lot more with that than Gabapentin but I feel lethargic. Not good since my age is having that affect also.

I'm going to ask my doctors about IV Iron. I think my GP will refer me to a Haematologist and I'll show them the study explained in other posts and we'll see where that goes.


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