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myoclonus

Posted: Thu Jul 18, 2019 7:59 pm
by fuz_mind
has anyone experienced increased myoclonus after an increase of their DA? it's not just happening before sleep. wondering if that is a known side effect of DA?

Re: myoclonus

Posted: Thu Jul 18, 2019 9:28 pm
by stjohnh
My occasional jerks didn't seem to change with pramipexole.

Re: myoclonus

Posted: Fri Jul 19, 2019 12:26 am
by ViewsAskew
I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot.

Re: myoclonus

Posted: Fri Jul 19, 2019 8:17 am
by Frunobulax
ViewsAskew wrote:I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot.


Curious. I remember this from augmenting too, but for me it was never periodic, hence I never called it PLMW.

Re: myoclonus

Posted: Fri Jul 19, 2019 8:58 am
by ViewsAskew
Frunobulax wrote:
ViewsAskew wrote:I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot.


Curious. I remember this from augmenting too, but for me it was never periodic, hence I never called it PLMW.


Please help me understand...when you say it wasn't periodic, I am not following. Did it just happen once in awhile rather then several in succession?

Re: myoclonus

Posted: Fri Jul 19, 2019 2:09 pm
by fuz_mind
ViewsAskew wrote:I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot.


thanks for sharing. did you get it in the day as well? i noticed increased frequency on my legs initially at night, now i get them in the day from time to time; now on my arms as well after my ropinrole was increased to 1.5mg

Re: myoclonus

Posted: Fri Jul 19, 2019 9:04 pm
by Frunobulax
ViewsAskew wrote:
Frunobulax wrote:Curious. I remember this from augmenting too, but for me it was never periodic, hence I never called it PLMW.


Please help me understand...when you say it wasn't periodic, I am not following. Did it just happen once in awhile rather then several in succession?


Yes, exactly. But it would usually force me to get up and walk around, so this may have prevented further jerks.

Re: myoclonus

Posted: Sat Jul 20, 2019 9:37 am
by ViewsAskew
fuz_mind wrote:
ViewsAskew wrote:I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot.


thanks for sharing. did you get it in the day as well? i noticed increased frequency on my legs initially at night, now i get them in the day from time to time; now on my arms as well after my ropinrole was increased to 1.5mg


During augmentation, it was 24/7. PLMW at any point while awake, PLMS during sleep (when I rarely did sleep), and RLS constantly (even during sleep).

Re: myoclonus

Posted: Sat Jul 20, 2019 9:39 am
by ViewsAskew
Frunobulax wrote:
ViewsAskew wrote:
Frunobulax wrote:Curious. I remember this from augmenting too, but for me it was never periodic, hence I never called it PLMW.


Please help me understand...when you say it wasn't periodic, I am not following. Did it just happen once in awhile rather then several in succession?


Yes, exactly. But it would usually force me to get up and walk around, so this may have prevented further jerks.


I don't think mine was rhythmic or regular, either. I would have the movements even while walking or standing. It seems to be very typical of augmentation when augmentation is on the more severe side.

Re: myoclonus

Posted: Tue Jul 30, 2019 7:43 pm
by fuz_mind
it seems better now that my ropinirole has been cut to 1.25mg..........

Re: myoclonus

Posted: Wed Jul 31, 2019 2:49 am
by ViewsAskew
fuz_mind wrote:it seems better now that my ropinirole has been cut to 1.25mg..........


That is good.

Re: myoclonus

Posted: Fri Aug 02, 2019 5:54 pm
by fuz_mind
ViewsAskew wrote:
fuz_mind wrote:it seems better now that my ropinirole has been cut to 1.25mg..........


That is good.


i'm wondering if this is a sign of augmentation? if it improves with reduction of medication? because my neurologist and his learned colleagues r of the opinion that the leg and hand jerking are a sign that i need more ropinirole

Re: myoclonus

Posted: Fri Aug 02, 2019 7:44 pm
by ViewsAskew
fuz_mind wrote:
ViewsAskew wrote:
fuz_mind wrote:it seems better now that my ropinirole has been cut to 1.25mg..........


That is good.


i'm wondering if this is a sign of augmentation? if it improves with reduction of medication? because my neurologist and his learned colleagues r of the opinion that the leg and hand jerking are a sign that i need more ropinirole


In my experience and that of people here (anecdotal, but over 15 years), daytime jerking is augmentation. Of course, it can be other serious things!

When I augmented and learned what it was, I slowly decreased the pramipexole. When I did, the jerking diminished, as did the horrible over-the-top symptoms. When I stopped it completely, the jerking came back. As time went by, over a few weeks, the jerking greatly reduced. It took quite awhile before all daytime jerking stopped - it was in my hands, oddly enough, that lasted the longest. And, in my hands it was minor - a flutter when typing. But, it did stop.

That is just my experience, though. I do know others have mentioned daytime PLMs when augmented. How many? No idea. But, enough that I would feel safe saying there is a good chance that it is related to augmentation.

Re: myoclonus

Posted: Sat Aug 03, 2019 2:11 pm
by fuz_mind
ViewsAskew wrote:
fuz_mind wrote:
ViewsAskew wrote:
That is good.


i'm wondering if this is a sign of augmentation? if it improves with reduction of medication? because my neurologist and his learned colleagues r of the opinion that the leg and hand jerking are a sign that i need more ropinirole


In my experience and that of people here (anecdotal, but over 15 years), daytime jerking is augmentation. Of course, it can be other serious things!

When I augmented and learned what it was, I slowly decreased the pramipexole. When I did, the jerking diminished, as did the horrible over-the-top symptoms. When I stopped it completely, the jerking came back. As time went by, over a few weeks, the jerking greatly reduced. It took quite awhile before all daytime jerking stopped - it was in my hands, oddly enough, that lasted the longest. And, in my hands it was minor - a flutter when typing. But, it did stop.

That is just my experience, though. I do know others have mentioned daytime PLMs when augmented. How many? No idea. But, enough that I would feel safe saying there is a good chance that it is related to augmentation.



thanks for sharing your experience! appreciate it!

Re: myoclonus

Posted: Mon Aug 05, 2019 4:36 pm
by Polar Bear
I am not aware of having PLMs either awake or asleep.
However i do have occasional jerks. Not every day. Maybe not for several days.
Actually, thinking about it, it could be a couple of weeks since I've had any. Then there are days when I could have half a dozen random jerks. Usually the shoulder or arm, sometimes the leg, and always on the right hand side of my body.

They are much less since I stopped taking Tramadol. On Tramadol my leg would shoot out. Might even have gone from below me.