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Re: Infusion #3

Posted: Fri Jan 03, 2020 6:39 pm
by 2restless
We couldn't afford the Injectafer either and went with the LMW iron, which worked wonders. It was about $415 out of pocket for the infusion and the nursing care to give it. We got another type 1.5 years prior to this, and it did nothing. I think Injectafer and LMW are the only twp to try. I had to fight to get the LMW iron as the pharmacist was not familiar with it and was concerned about anaphylaxis and wanted to give it over 8 hours. Got the protocol that Stanford and Johns Hopkins uses and that took care of that problem. Good luck, I hope you feel better.

Re: Infusion #3

Posted: Fri Jan 03, 2020 8:13 pm
by ViewsAskew
2restless wrote:We couldn't afford the Injectafer either and went with the LMW iron, which worked wonders. It was about $415 out of pocket for the infusion and the nursing care to give it. We got another type 1.5 years prior to this, and it did nothing. I think Injectafer and LMW are the only twp to try. I had to fight to get the LMW iron as the pharmacist was not familiar with it and was concerned about anaphylaxis and wanted to give it over 8 hours. Got the protocol that Stanford and Johns Hopkins uses and that took care of that problem. Good luck, I hope you feel better.


Yeah, the cost out of pocket is CRAZY!!!!

I had to explain it to this doc - but he really was on board when I showed him the study. I had the pages marked on my phone, so I could go right to the salient points. He read them and said yes.

So glad it worked so well for your husband!