Experience of having IV iron

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
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jul2873
Posts: 399
Joined: Thu Nov 15, 2012 7:32 pm

Experience of having IV iron

Post by jul2873 »

I had my first IV iron infusion yesterday. I decided to post about it in case anyone out there was as scared as I was. I had read online that the infusion would last 3-4 hours. I would have an IV inserted, and then 3-4 later I would be finished.

So I was very nervous. Six months earlier I had a colonoscopy, and it was a nightmare--not because of the colonoscopy itself, but because they had told me not to take any meds because they might interfere with the meds I would be given. I wasn't too worried, as I had had a knee replacement a year ago, and they must have put opioids in my IV, as I was very comfortable. But, it turned out, whatever they gave me for the colonoscopy did nothing to help my RLS--maybe hurt it. All I know is that when I woke up my legs were just out of control--worse I think then they've ever been. And my blood pressure was up to 240, and it's usually around 120. So they wouldn't let me leave until my blood pressure was down, but neither would they give me anything for the RLS. Pure torture. I was afraid of this kind of thing happening again.

So I packed all of my meds, and arrived early so I could talk with the nurse. She said the only thing in the IV was the iron, some glucose, and vitamin B-12. So I could take some RLS meds. I took some kratom (dissolved in orange juice as it works the fastest), a small ropinirole (0.25) and two little edible cannabis candies. The best thing was the whole thing only took an hour and a half, and I was sitting in a big chair rather than lying on a table. I was completely comfortable, and watched a movie I had downloaded to my iPad. I was a little dizzy at the end--not sure if it was the meds or the iron. But luckily I had arranged for my daughter to drive me home.

So the experience was fine. I could even have worn long sleeves, as they used the vein in my wrist. I don't know if it will help yet, but at least I won't worry about the next two times I'm scheduled to go.

badnights
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Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Experience of having IV iron

Post by badnights »

awesome! Mine was very fast, only about an hour. It took a month to kick in. I hope it happens for you!
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

badnights
Moderator
Posts: 5761
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Experience of having IV iron

Post by badnights »

P.S. I've moved this Topic to Prescription Medications. A shadow Topic has been left behind so it can still be found in Non-prescription, but comments will automatically be stored in the new Topic.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

jul2873
Posts: 399
Joined: Thu Nov 15, 2012 7:32 pm

Re: Experience of having IV iron

Post by jul2873 »

Thanks. I wasn't sure where to post it.

ViewsAskew
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Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Experience of having IV iron

Post by ViewsAskew »

I hope it helps!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

legsbestill
Posts: 551
Joined: Tue Aug 30, 2016 7:22 pm
Location: Dublin Ireland

Re: Experience of having IV iron

Post by legsbestill »

Thank you for this. My first IV iron infusion was deferred due to covid19 restrictions and I don't know when it will be rearranged. I was, however, slightly anxious about the process and it's nice to get the reassurance about it.
On a different note, I was thinking of you, Jul2873, as it was thanks to posts by you that I first tried kratom and it has been a life-saver for me. In recent months, for a variety of reasons, I have been taking it through the day even though my symptoms are mainly at night. I have noticed that if I take two or three dosess (a dose for me is a flat tsp currently), I consistently need much less kratom through the night - sometimes none. I cannot account for this as the effects seem to wear off after 4 hours if I only take it through the night whereas they seem to be cumulative if I take it through the day. I wondered if anyone else has experienced this?

jul2873
Posts: 399
Joined: Thu Nov 15, 2012 7:32 pm

Re: Experience of having IV iron

Post by jul2873 »

Hi Legsbestill,

Thanks for the nice note. So glad kratom has been helping you. It is still my major med after 8 years, although now I have added a little marijuana (a couple of the edible candies every 24 hours) and a very small ropinarole). They have allowed me to cut down on the kratom. I do use kratom during the day, as I need it to lay down in the afternoon. And I do notice that if I take a fair amount during the day I do need less at night. Now, after 3 iron infusions, I usually get up only once (or occasionally twice) in the night. So I'm doing very well!

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