Stopping Gabapentin

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
Post Reply
XWelcome
Posts: 7
Joined: Sun Jan 28, 2018 8:06 am

Stopping Gabapentin

Post by XWelcome »

Has anyone had severe RLS after getting off of Gabapentin or Horizant. If so what did they do?

ViewsAskew
Moderator
Posts: 16101
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Stopping Gabapentin

Post by ViewsAskew »

How long did you take gapapentin, XWelcome? It could be that your RLS simply worsened over time.

I cannot recall if there is any known issue regarding stopping gabapentin - I am relatively tired, so may not be remembering, though.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7863
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Stopping Gabapentin

Post by Polar Bear »

Possibily the Gabapentin was helping to control your RLS symptoms. When you came off the Gabapentin you lowered/stopped a medication that was helping your RLS symptoms.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

stjohnh
Posts: 1084
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Stopping Gabapentin

Post by stjohnh »

Likely your RLS was controlled mostly by the Keppra with some boost from the gabapentin. Anticonvulsants can help control RLS symptoms, but experience is limited. Several uses of this forum have had quite good results with some anticonvulsants, but they are people with severe RLS and usually have been tried on the usual meds without good results.

The most common treatment RLS patients receive is a dopamine agonist (Requip, pramipexole, Neupro). When their symptoms worsen, gabapentin (or Lyrica/Horizant) is added or tried alone. After that, if IV iron doesn't help, opioids are used.
Blessings,
Holland

QyX
Posts: 700
Joined: Wed Mar 13, 2013 12:53 pm
Location: Berlin / Germany

Re: Stopping Gabapentin

Post by QyX »

Why not just take Gabapentin / Horizant again when it worked well for RLS?

Why did you get off it in the first place? Where the drugs prescribed for RLS or some other condition?

leggo_my_legs
Posts: 349
Joined: Sun Oct 16, 2016 12:29 am

Re: Stopping Gabapentin

Post by leggo_my_legs »

Yes, all kinds of crazy withdrawals from gabapentin. Withdrawals can be (are?) paradoxical. Whatever effect you were getting relief from with the medication, can worsen and become severe in withdrawal.

I kept going off it. Very slowly, at a crawl. Microtapering.

badnights
Moderator
Posts: 5628
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Stopping Gabapentin

Post by badnights »

Wbhen I stopped gabapentin, I had terrible, terrible bad WED/RLS. But I stopped codeine at the same time. I was convinced it was the gabapentin that I felt, because I tapered the codeine a bit, also because I had some low doses of oxycodone which also would have helped if it was opioid withdrawal, and finally because I felt no nausea at all, which I would have expected from an opioid withdrawal; but of course since I basically stopped both meds at the same time, I'll never be able to say which one caused the worsened symptoms. I remain fairly certain it was the result of stopping gabapentin abruptly. But I was a basketcase at the time. Maybe it was the result of stopping codeine.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Post Reply