dipyramidol 75mg for RLS

[James7]

Has anyone tried dipyramidol 75mg for reduction in RLS symptoms? It is a platelet reducer. New research in 2018 showed promise. I am just wondering if anyone has tried it and what the results were? Side effects? Advice?

[ViewsAskew]

Hi James7 - yes, someone did. If you search on the word, you'll find posts of the person who tried it. I am sure he'll be along to add to his story, too.

[ViewsAskew]

I did the search and came back to post the link: viewtopic.php?t=10114

[stjohnh]

Hi James,
I'm the one that used dipyridamole. The link posed by Ann has most of the information. I stopped using it when I started getting IV Iron infusions, which has replaced the need for most meds for RLS. I still use some THC and Kratom for sleep, but I don't use anything else for urge-to-move.

[James7]

Holland, I take an otc iron supplement, SlowFE. My iron levels look okay according to my neurologist who is a restless leg specialist. Unfortunately I cannot get to sleep and stay asleep because of the leg and other movements. I have movements in my face my arms my legs my shoulders Etc. My doctor admitted I am a difficult patient. I know glutamate has an effect on my restless leg and anxiety. I already eat a low glutamate diet to assist with this. My doctor is trying this medicine along with a long cocktail of other things to help me. I hope it is successful because I am only 52 years old and I'm still trying to work. I am wondering about iron infusions. How did you get to that point and who prescribes them? Do you have side effects? Did it take all restless leg movements away?

[srgraves01]

I tried dipyramidol. But unlike Holland, who I believe it helped, it made me worse, significantly worse; I had some of my worst nights ever. So if you try it be careful.

Steve

[stjohnh]

I am wondering about iron infusions. How did you get to that point and who prescribes them? Do you have side effects? Did it take all restless leg movements away?

James, see this thread, viewtopic.php?p=94821#p94821 I think it answers your questions about iron. What was your ferritin level? Even some docs that treat RLS frequently don't understand the iron connection. Find out the actual ferritin level, because lots of people have a "normal iron" and it is still too low for people with RLS.
Injectafer is the preferred form of IV Iron.

RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or even eliminated with IV Iron treatments. This is the only treatment that gets at the basis for RLS (low brain iron). It has almost no side effects. The International Restless Legs Syndrome Study Group has elevated IV Iron treatment to first line therapy. This means that IV Iron is one of the first treatments doctors should try, not one of the last (as has been done for many years). If you can get your doc to prescribe IV Iron treatment, that is the way you should go. Unfortunately this is fairly new information and most docs, even those that frequently treat RLS, are not aware of it. Note that the blood test doctors usually do to check for low iron (ferritin test) only checks for low BLOOD iron, there is no test available for checking for low BRAIN iron. Oral iron usually doesn't provide a high enough blood level increase to help, folks need IV Iron infusions. Here is a link to the recommendations:
https://www.sciencedirect.com/science/a ... via%3Dihub

[Kansas]

re taking the iron, did you try the method of taking 2 tablets of what is recommended on the bottle and take the 2 ever other day? that helped me.