Restless Legs Syndrome (RLS) Discussion Board

There is a fire to the west of us, one to the south and one to the east, all 20 miles away. A few days ago the smoke was very bad. I could smell it in my house. Then a storm came through with high winds which helped and got a couple of feet of snow in the mountains which helped too. Smoke has gotten better in our valley.
I know California is bad too.

debbluebird wrote: ↑

Mon Sep 14, 2020 3:37 pm

There is a fire to the west of us, one to the south and one to the east, all 20 miles away. A few days ago the smoke was very bad. I could smell it in my house. Then a storm came through with high winds which helped and got a couple of feet of snow in the mountains which helped too. Smoke has gotten better in our valley.
I know California is bad too.

I've been lucky - the fires are all at least 40-50 miles from me. We do have some ash on our balcony and the air quality is not great - but I cannot smell smoke.

I am now glad that I was able to reduce the methadone. I saw the Doctor at the pain clinic in Albuquerque. The first thing she said was, she does not prescribe methadone. Needless to say, I knew this would happen. She ordered an MRI and X-rays to look at my back. She thinks a spine stimulator will block the pain and spasms. I am open to trying it. I have never liked taking any drugs for this. We didn't even get to the RLS. I was so upset that I know I didn't communicate very well. By the end of the appointment she wrote for a prescription. I run out in 11 days. I won't be seeing her again until Dec 10th. I am just so tired of fighting Doctors.

debbluebird wrote: ↑

Fri Nov 13, 2020 6:54 pm

I am now glad that I was able to reduce the methadone. I saw the Doctor at the pain clinic in Albuquerque. The first thing she said was, she does not prescribe methadone. Needless to say, I knew this would happen. She ordered an MRI and X-rays to look at my back. She thinks a spine stimulator will block the pain and spasms. I am open to trying it. I have never liked taking any drugs for this. We didn't even get to the RLS. I was so upset that I know I didn't communicate very well. By the end of the appointment she wrote for a prescription. I run out in 11 days. I won't be seeing her again until Dec 10th. I am just so tired of fighting Doctors.

Ugh. So glad you have been decreasing. So hard to have these appointments - I never get to explain what I really want/need/mean, so I really feel for you.

I always come away thinking "I didn't explain that right". And sometimes my doctor will say something that shows she really doesn't get what's going on with me. But I don't know the solution. Maybe if you have a partner who can go in with you? But that depends on if he's in tune with you.

I always have notes with me at an appointment, with bullet points.
Thing is, I have to prioritize the bullet points. And time limitation means you're trying to say what you need to on a bullet point while knowing that there's other bullet points you need to get to. i'ts nigh impossible to cover all the bullet points let alone say what needs to be said on any particular bullet point.
Sorry.... that was very wordy!!

Not at all/. And exxtly right. I walk away with unchecked boxes, intending to get to them next time, but some eventually just fall off the plate (page?).

Well, my latest development is that I believe my muscle relaxant, (Tizanidine) started increasing my leg spasms and RLS. I thought I would try to decrease my methadone a little more, so I increased the muscle relaxant. Everything just got worse. I went back up on the methadone just after two nights while keeping the increased muscle relaxant the same. Then last night increased the muscle relaxant to 4 tablets. My leg was going all night, every hour.
Tonight I did not take any Tizanidine and just added my CBD/THC oil. So far it's ok. I didn't have spasms or RLS all day and evening like I have been getting.
I hope I can sleep some tonight.

How did it go?

I had insomnia at first. Finally got to sleep after 3 am. No spasms though. I spaced the methadone to every 12 hours which might help. Will see.

I am definitely having insomnia. For three days I had leg spasms during the day as well at night and insomnia at night.
Then finally yesterday my leg was quiet during the day, but then when I went to bed, the insomnia was there. The CBD/THC oil helps with that but I'm going to run out. I was awake from 3 am to 5 am until I took more of the oil.
I see the Doctor Thursday I hope. I may have been exposed to covid last Tuesday so I'm not sure if they will let me go. I was with my Daughter Tuesday and now she has covid. I feel fine. It's been 6 days so I hope I'm ok.

The incubation period for Covid can be anything from 5 - 14 days.
I doubt that your doctor would let you go the the appointment if there are any concerns.
I do hope you stay well. Good luck.

Hope your daughter has a mild case and that you have NO case!

My Daughters covid test came back negative as well as her boy friends test. They are having him retested.

His second test came back negative. Very good news.
I have been struggling. Leg spasms are worse again. They want me to exercise, but that causes an increase in spasms. Last night I was up from 2 am to almost 7 am. I have even added back 300 mg of gabapentine. I was desperate.
Everything else is coming together. A new sleep study is planned as soon as it is feasible, with covid. Moving to a lower altitude, I'm sure my settings on my bipap need to be adjusted.
This coming Wednesday I'm getting an injection in the lower back between L3 and L3. Some kind of block. It might help my leg. After that moving forward in getting a spinal stimulator. After all of that I need a Reversed total shoulder replacement. I am not looking forward to that, but I have a 2 inch tear in my rotator cuff. Again, depending on covid. It might be awhile. That will be my 6th joint replacement. Lets say I'm falling apart and they are putting me back together. It's all I seem to do is go to the Doctor. At least my cancer is gone. I envy healthy people.