Has anyone tried buprenorphine?

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
Polar Bear
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Re: Has anyone tried buprenorphine?

Post by Polar Bear »

A supportive doctor is worth his weight in gold.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
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Re: Has anyone tried buprenorphine?

Post by debbluebird »

It was a wonderful week without any RLS. It started very mild last night. I restarted the buprenorphine. That seems to work best if I wait until it starts. Taking it a few hours before bed doesn't work. It takes affect very quickly. The steroid injections are a factor.
Such as life.

Oozz
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Re: Has anyone tried buprenorphine?

Post by Oozz »

I find that my sleep quality is worse on buprenorphine than methadone. If I had to choose an opioid, methadone would be my preferred.

debbluebird
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Re: Has anyone tried buprenorphine?

Post by debbluebird »

Actually I agree.

debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Has anyone tried buprenorphine?

Post by debbluebird »

I'm still doing well with buprenorphine. When my RLS is worse, I take 1/4 of the film. After I've had an injection of a steroid in my back, then I take less. Either none or 1/8th of a piece.
I had more break through RLS on methadone and before that mirapex.
I'm sleeping much better.

Polar Bear
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Re: Has anyone tried buprenorphine?

Post by Polar Bear »

Excellent news. We are so happy that this continues to work for you.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Has anyone tried buprenorphine?

Post by debbluebird »

It's turning out that I am taking 1/4 th of the film. I have started exercising. When I do anything but sit, I have increased RLS. This is working to take it at 2:30 pm. I may even move it to 2 pm to combat alertness. At least my RLS is gone.

Brendan
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Joined: Sat Jan 25, 2020 9:30 pm

Re: Has anyone tried buprenorphine?

Post by Brendan »

I have been on it for more than a year. Around 1/3 of a 2mg SL tablet so around 0.7 mg. It stops all RLS symptoms at night - it is the best medication in that regard. Main side effects: unable to fall asleep, usually accompanied by a sense of euphoria/excitation. Staying awake until 4AM. Difficulty waking up before noon. Extreme tiredness/drowsiness in the afternoon (unable to stay awake). Lack of energy/motivation during the day. Some dizziness/nausea during the day. I read that the SL tablets can cause tooth decay - you should rinse right after absorption.

I take it at 9:30PM but the bottle says take at 4:00PM so I may have to try taking it earlier and see if that helps. I don’t want to take it that early because it makes me feel “off” and I want to enjoy workouts/dinner etc.

I don’t think it is a long term solution if I want to stay employed.

Ropinirole caused severe augmentation but I had more energy during the day.

debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Has anyone tried buprenorphine?

Post by debbluebird »

I would try moving your dose to earlier. That really helped me with the alertness. I usually am able to go to sleep between 11 and midnight. If I took it at 9:30 pm, I'd be up all night.
Good luck.

Brendan
Posts: 10
Joined: Sat Jan 25, 2020 9:30 pm

Re: Has anyone tried buprenorphine?

Post by Brendan »

I will try earlier - thanks

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