I had Injectafer Infusions on 4/4 & 4/11/22. Very pleased to report positive response. I’ll post some info; you are welcome to ask questions for more info.
Suddenly developed RLS about 12 years ago. Otherwise very healthy. Several/All meds led to augmentation and severe RLS. Started Oxy and Horizant with fairly good results for about 3 -4 years. (Always took my meds.). Sleep problems increased and RLS began in arms as well as legs during day. Doctor ordered Injectafer infusions.
About 5 weeks post Injectafer infusions, noticeable decrease in RLS. Continued meds as usual. Much more rested, energetic during day. Two days ago decreased Horizant and will decrease 1/3 dose for a week. If successful will decrease by 1/2.
PRIOR, while taking oral iron my Ferretin continued decreasing to 18 ng/Ml. Iron was 95 ug/dl & Iron Sat was 34%.
POST Injectafer (4 week mark) Ferretin 590 ng/ml, Iron 166 ug/do & Iron Sat 78%.
Pleased with results. Goal to better control RLS and reduce meds if possible.
Injectafer Infusions - Update
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Polar Bear
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Re: Injectafer Infusions - Update
What a wonderful result from your infusions. It's helpful for other members to read how this was successful for you.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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ViewsAskew
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Re: Injectafer Infusions - Update
Great news!
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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badnights
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Re: Injectafer Infusions - Update
What good results. YAY!!
Beth - Wishing you a restful sleep tonight
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
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Dr.Placebo
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Re: Injectafer Infusions - Update
That's great. I have been on oral iron for 3.5 months and just had my f/u iron panel drawn prior to the weekend. Anxiously awaiting results so I can get my IV iron --I am assuming my ferritin will be <100. It was 41 when I started oral iron but I understand oral absorption drops off once ferritin gets above 75. I will specifically suggest iron carboxymaltose (Injectafer) to my doc. I will keep the group updated.
Paul