Opioids, handling side effects, decreasing dosage; cannabis

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AriaLittlhous
Posts: 7
Joined: Tue Jul 10, 2018 1:29 am

Opioids, handling side effects, decreasing dosage; cannabis

Post by AriaLittlhous »

Hi, this is my first post. I hate Oxy but it's the only thing that's worked for me recently. Before back surgery, I was on 5 mg of Oxycodone at 6 pm and 10 of Oxycontin at 9 pm, for about 3 years. Before that, pramipexole for 10. The (successful!) back surgery was two months ago and I've decreased my Oxy from 40 mg/day to 20 mg at night. That is 10 mg of Oxycontin at 5pm and 9 pm. I want to get it down to at least where I was before the surgery, and I'm still holding out hope (don't tell anyone) that the surgery will result in the elimination of my rls. I say this because I'm having some nerve pain the MD's say will abate eventually. I'm hoping the rls is actually in the same category--but that's a tangent. Does anyone have any tricks that help with detoxing? Or with uneven absorption? Even when my dose is constant sometimes I feel like I spend the whole next day in withdrawal with mood swings. I think I finally got my laxative situation under control. I also use cannabis. I will be talking to a Pain MD, not an RLS specialist, about this all next week, but I'm in pain now. I've also gotten a lot of good tips from the rls facebook group--its just hard to contact the Oxy users in that group. I"m supposed to be looking for a new RLS md in the Boston area (Waltham) but I feel awful so much, I just haven't gotten to it. Thanks for anything anyone can recommend.

ViewsAskew
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Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Opioids, handling side effects, decreasing dosage; cannabis

Post by ViewsAskew »

Hi - many of us here are on methadone. A few on Oxy. Hope someone has some advice for you.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Frunobulax
Posts: 438
Joined: Mon Jun 02, 2014 7:41 pm

Re: Opioids, handling side effects, decreasing dosage; cannabis

Post by Frunobulax »

My doc, who prescribes a lot of opioids, stresses that any reduction must happen very slowly. He recommended to me to reduce my Oxycodone no more than 5mg a month.

I can confirm that RLS flares up for weeks and longer. I was down to your dose (5mg around 2pm + 10mg around 9pm, slow release Oxycodone). Then I took a 2-day trip, ate some food I didn't prepare myself, and had severe breakthrough symptoms even after going up to 10mg/10mg and throwing in additional L-Dopa. It took over a week until I was back to my usual state (only occasional symptoms, typically after a few hours of sleep) without L-Dopa, but back at 10mg+10mg a day. I will try to go back to 5mg+10mg soon.

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