Hi Everyone,
Just recently came across this forum and it's been a big help and given me a sense of comfort while coping with RLS.
I came across a wearable therapy option that requires a prescription and was wondering if anyone has heard of or used this device to treat their RLS symptoms? It attaches to the upper calf area just below the knee and emits an electronic pulse to provide symptom relief.
They are a relatively new company that claims that their device is the first and only drug-free wearable therapy and clinically proven to reduce symptoms when other prescription medication is not providing relief. At this time they are accessible in California, Massachusetts, and Missouri, Connecticut, Rhode Island, and select areas of Ohio and South Carolina.
Not sure if this is a scam. Here's the link to their site: https://nidrarls.com/
Your thoughts are appreciated.
Anyone Heard of Nedria Tomac Therapy?
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Re: Anyone Heard of Nedria Tomac Therapy?
It is not a scam. One of the researchers involved was Dr. Mark Buchfuhrer, one of the leading RLS doctors in the country. The device has been approved by the FDA for treating RLS. I have not tried it, but I did see the posters that they presented at the ASSM Sleep Conference last June and the study results were very impressive. Unfortunately, since the device is new and patented, it is also expensive.Not sure if this is a scam.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Re: Anyone Heard of Nedria Tomac Therapy?
I was in the study - for a short time. It doesn't really work with severe symptoms, so I washed out. I wish I could say positive things, but my symptoms are barely covered by both methadone and pramipexole, at a dose that is pretty high.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Re: Anyone Heard of Nedria Tomac Therapy?
Ann, that explains why they wouldn't accept me into the study. My symptoms are not as bad as yours, but they were too severe to be accepted (which is what happens in every RLS trial I have tried to join except the Opioid Registry).
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Re: Anyone Heard of Nedria Tomac Therapy?
On the advice of my doctor I bought a device called Quell that was exactly what you describe. It wraps around the leg under the knee and had to be adjusted to the level you could feel the electronic pulse. This was about 5 years ago. I got no relief at all and just lately I was researching this device and found out that it had been taken off the market because it was found not to be effective. I hope the device you're thinking of does work but the Quell one certainly did not.
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Re: Anyone Heard of Nedria Tomac Therapy?
Mrs Weary, thank you for telling us of your experience with Quell. All such information is useful as it may prove to be of interest to a member.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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Re: Anyone Heard of Nedria Tomac Therapy?
I just read about this device today. Very interested in finding a doctor to discuss this with. I have been on gabapentin for 4 years, but it has recently seemed to stop working as well. I keep waking up with symptoms; it doesn’t help to take more than five 300 mg pills, I am no longer getting relief at that level as I once did. More pills don’t help. I don’t want to take any drug that risks augmentation. I have a leg massage device from Amazon that helps some but I hate using it in the middle of the night. I would pay a lot out of pocket to get a non drug option that would work.
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Re: Anyone Heard of Nedria Tomac Therapy?
Dr Buchfuhrer in Los Angeles took part in the clinical trials of the device and would therefore be familiar with it.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Re: Anyone Heard of Nedria Tomac Therapy?
I know what you're saying!West_Coast wrote: ↑Tue May 14, 2024 2:58 amI just read about this device today. Very interested in finding a doctor to discuss this with. I have been on gabapentin for 4 years, but it has recently seemed to stop working as well. I keep waking up with symptoms; it doesn’t help to take more than five 300 mg pills, I am no longer getting relief at that level as I once did. More pills don’t help. I don’t want to take any drug that risks augmentation. I have a leg massage device from Amazon that helps some but I hate using it in the middle of the night. I would pay a lot out of pocket to get a non drug option that would work.
Gabapentin can be life-saving, but it's frustrating when it stops working.
I've experienced that too. A drug-free alternative sounds great, especially if it provides lasting relief.
Have you thought about talking to a neurologist or pain therapist about this device?