Xyrem, it works!

rfishburn · Post by **rfishburn** » Mon Oct 02, 2006 4:12 pm

Last few weeks have been much better. I think I have been medicated with narcotics etc for so long it may have taken a while for my body to adjust. My dose has been moved up to 6ml X2 and I get about 2 1/2 to 3 hours per dose. My nose has been continually stuffed up but breathe right nasal strips mostly take care of that. For me the reduction in daytime symptoms have been a great side effect, I took an ultram for the first time in about 5 days today and thats pretty good. I am starting to have more hope that at the higher doses things will improve even more. I have also lost some of the lyrica weight!!

Post by **ViewsAskew** » Mon Oct 02, 2006 7:08 pm

Excellent. I hope more stories like yours will help other docs be willing to try this.

rfishburn · Post by **rfishburn** » Mon Oct 02, 2006 7:09 pm

Good to hear from you ann. How are things treating you?

rfishburn · Post by **rfishburn** » Fri Oct 13, 2006 11:13 pm

Just thought I would post an update. Went up to 7.5 X2 and for the first time in a while I got 7 hours of sleep, got up worked out and cleaned. Nore more side effects, I was sweating more at night and the daytime anxiety is more or less gone. The anxiety might have been from having been on pain meds for so long...it's starting to look more and more like 8 or 9ml's X2 will be the magic number.
Also my weight is down another few pounds and so nagging aches and pains seem to be going away.

Post by **ViewsAskew** » Sat Oct 14, 2006 12:24 am

I am so glad you are posting about this. It's one more thing to add to our arsenal - if we can get anyone to prescribe it!

Sorry I missed your earlier post! All is well with me - too busy, but otherwise OK. The Methadone keeps working, which is a small miracle. I am really, really, really too busy, though. Being self-employed is feast and famine. Right now I have so much feast, I am worried I won't get to it in time.

rfishburn · Post by **rfishburn** » Mon Oct 16, 2006 4:14 pm

Feeling good enough to miss a post is a good thing, glad you are getting some relief!

rfishburn · Post by **rfishburn** » Mon Oct 23, 2006 10:09 pm

wow, when you have a bad night on this stuff it is real bad. Last night was my once a week no sleep at all night....I wish I could crawl under my desk right now.

rfishburn · Post by **rfishburn** » Fri Oct 27, 2006 7:06 pm

I just realised something, it's been two full weeks since i have had any daytime problems with my legs. I always had a little but after sinemet, requip and mirapex i had 24X7 problems.

ctravel12 · Post by **ctravel12** » Sat Oct 28, 2006 2:27 am

Hi Randy, I am so glad that you are doing so much better and hope that it continues. Have a nice restful evening.

Post by **ViewsAskew** » Sat Oct 28, 2006 5:30 am

That is wonderful. I hope the docs talk about this some at the convention. I have to remember to ask them about it if they don't. . .

rfishburn · Post by **rfishburn** » Tue Nov 14, 2006 10:24 pm

My neuro did talk about it at a confrence. As for me I have pneumonia now(is that how it is spelled?)no xyrem...mayhaps next week.

ctravel12 · Post by **ctravel12** » Wed Nov 15, 2006 12:01 am

Oh Randy, I am so sorry that you have pneumia. I hope that you get better soon. I had walking pneumia the early part of this year and that was no picnic. I hope that you are able to take some antibiotics. Take care of yourself.

jan3213 · Post by **jan3213** » Wed Nov 15, 2006 12:31 am

WAM

I hope you get well very, very soon! Take care of yourself.......

Jan

rfishburn · Post by **rfishburn** » Sun Nov 19, 2006 2:43 am

Thanks for the kind words, I am starting to feel better now. hopefully will be back on the xyrem soon. I am now down almost 24 pounds woo hoo!

ctravel12 · Post by **ctravel12** » Sun Nov 19, 2006 2:26 pm

Hi Randy so glad that you are feeling better and congratulations on the weight loss.

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