Marinol (Synthetic THC)

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
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Anonymous

Marinol (Synthetic THC)

Post by Anonymous »

Hello everyone.

This is good for nausea caused by other drugs.
Last edited by Anonymous on Thu Mar 29, 2007 4:06 pm, edited 1 time in total.

ksxroads
Posts: 645
Joined: Tue Aug 02, 2005 8:19 pm
Location: Kansas

Post by ksxroads »

Dear Em,

While I don't have any info on this... I just wanted to say keep asking away, as I learn a lot from others responses. You are helping out in many ways, just wish you didn't feel so rotten. Keeping you in my thoughts and meditations... sending you as much ******Positive Energy******* as I can muster... Hazey
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation.

Music can be made anywhere, is invisible and does not smell. --W H Auden

ViewsAskew
Moderator
Posts: 16204
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Post by ViewsAskew »

I haven't heard of any good results for RLS, or anything else for that matter. It's not as strong as THC, from what I've read on other support groups, and docs don't prescribe it much. But, that said, I've only read a little about it here and there, so I wouldn't consider me a great source.

Many people, but certainly not all, do find smoking does work quite well, however. I know that I would have tried it had I known how to get it - at some point, for me anyway, the legalities of it just weren't important anymore - sleep was. My college days are looooong gone, however, and I was sure I'd end up in jail if I started asking random people on the street! I've since found out that a friend of a friend, a corporate guy - like CEO or CFO - smokes on weekends. No question - if I ever get to that point again, I'll be chatting with him!

Hey Em and Brandy, it's good for nausea for many people . . . 8)

Em, I hope that you either adjust to the Methadone soon or that Dr B tries Levorphenol or even the patch-narcotic (can't think of the name). Since they often do not have the same side-effects, one of them will hopefully work and not have the nausea, etc. You've got half the battle over - a good doc on your side - now you just need to find the right drug or combo for your sensitive system.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

FidgetBoy
Posts: 317
Joined: Thu Mar 16, 2006 8:07 pm
Location: Minnesota

Post by FidgetBoy »

Hi emily-- I have not seen this drug used for RLS but I have run across some posts here that smoking it (in it's natural state) helps some people. I actually ran into an old buddy of mine recently and found out he has severe RLS and has been treating himself by smoking weed for some time... he says it works very well and has no "side-effects" for him! In the hospital setting, we tend to use Marinol for the purposes of increasing appetite in AIDS/cancer patients-- and it appears to work fairly well for that! (munchies) But, like the smokable form, the side-effects can be intense-- major increase in appetite and sedation/feeling "high".

I will keep praying that something will work out for you, Emily!

Josh

Anonymous

Post by Anonymous »

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Last edited by Anonymous on Thu Mar 29, 2007 4:05 pm, edited 1 time in total.

cornelia

Post by cornelia »

Yes, dr B is a dear (do you say that in English?). You Americans must feel proud to have a docter like him in your country.

I have ordered his book already.

Corrie

Anonymous

Post by Anonymous »

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Last edited by Anonymous on Thu Mar 29, 2007 4:05 pm, edited 1 time in total.

jbuck
Posts: 27
Joined: Mon Aug 21, 2006 7:11 pm

marinol

Post by jbuck »

I suffer from severe RLS, where most drugs that I tried did not work. That includes Miripax, Requip, etc etc etc...

I am taking 5mg of marinol a day (at bedtime, but typically about an hour prior to bed) and I can't tell you how great it is working for me. I tried to take methadone for my RLS and I just could not tollerate the side effects. I also have Vicodin for the very bad days to help as well.

the 2.5mg of Marinol worked about 30-40% of the time, while the 5mg works about 60-70% of the time. If it is really bad, i will take a vicodin along with the marinol and that seems to keep it under control.

Like many people on here have stated before, smoking cannabis is really the best as it seems to take effect immediately and calms your legs, and it only takes a very small amount to accomplish this. However, due to the legal issues surrounding cannabis, Marinol seems to be the only legal way to get help. However, it is assumed that cannabis has other cannabinoids that are probably effective towards RLS where Marinol is just THC.

I am SO glad that my doctor allowed me to try Marinol as I was at the end of my rope and I'm glad that it has helped me. It is expensive, costing me about 300.00 a month, however, my insurance covers it at 100%, so I'm very lucky.

cornelia

Post by cornelia »

jbuck,

doet it work for RLS as well as PLMD? Thanks for your message anyway.

Corrie

jbuck
Posts: 27
Joined: Mon Aug 21, 2006 7:11 pm

Post by jbuck »

cornelia wrote:jbuck,

doet it work for RLS as well as PLMD? Thanks for your message anyway.

Corrie



yes, I have severe RLS with PLMD and it has been working great. I do also take vicodin for the really bad days or when my legs just really hurt. The pain can be unbearable at times, however, the marinol also seems to be able to help with that. So anything that lets me take less narcotics, the better.

I can't really express how grateful I am that my doctor let me try marinol.

cornelia

Post by cornelia »

Thanks, jbuck, for your info. I'll think about it and talk it over with my doc.

Corrie

Capsfan
Posts: 5
Joined: Mon Sep 25, 2006 7:55 pm
Location: Stephens City, VA

Post by Capsfan »

I am so thankful for this message board. Reading these posts has confirmed what I have suspected for awhile now. I have had RLS since I can remember, however not very frequently. I have "smoked" recreationaly for a long time, and recently stopped. This is when my RLS kicked into full gear. As I look back, I can accurately pinpoint the times that my RLS has been unbearable in the past. And, it just so happens that it is always when I have been out, or have quit for a period of time. My RLS has gotten so bad in the last two weeks (about two weeks after being "clean") that I have started to seek out causes. This message board is very insightful. Thank You

BeanieLee
Posts: 103
Joined: Tue Sep 12, 2006 7:05 pm
Location: Chicago

Post by BeanieLee »

I remember back in my younger and care free days that smoking seemed to always have the exact opposite effect on me that it had on other people or that it was supposed to have. Where other people got relaxed and mellow I got tense and my pulse raced and my nervous system went into hyperdrive. I remember a couple of times smoking just a tiny bit and feeling my legs go crazy, before I knew anything about rls. They'd feel tense and tight and my knees would hurt. It was like smoking had a strong adverse reaction on my nervous system. Instead of mellowing me out and potentially soothing the rls it made me jittery and made my legs feel horrible. Amen to anyone who finds something that works, as long it doesn't hurt anyone. But I can recall this having a very negitive effect on my legs. I hope that whoever tries marinol has a positive experience.
The light of a good character surpasseth the light of the sun

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