My mother was diagnosed with it a little over 2 years ago and we have been through all the medications...neurontin, sinemet, requip, mirapex, lorazepam, xanax, etc. We finally found a neurologist this last week who discovered some of the other meds my mom was taking for other conditions caused akinisia and were amplifying her RLS symptoms. Those meds were stopped and replaced with others that don't interfere and cause adverse side affects. She has also stopped eating sugar, chocolate, cafffeine, alcohol and items with aspartame which seem to increase RLS symptoms.
The last few weeks prior to this were horrible for her...she was pacing, panicked, in excrutiating pain and lacked sleep. She is now on amatryptaline, hydrocodone and klonopin...and the difference and turn around in her overall feeling and the symptoms is nothing short of a miracle. Amatryptaline seems to be the difference. The other meds she was already on, but adding that one piece has made a world of difference.
I hope all of you find the comfort and strength to go on with this. It is a hard fight, something no one should go through alone! I commend all of you for sharing your information, being candid and honest and most of all for treating each other with care and concern.
I am glad I found you as a resource! You all are great!
