Does anyone know how LDN affects RLS?

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RamblinRosie
Posts: 11
Joined: Fri May 22, 2009 8:01 pm

Does anyone know how LDN affects RLS?

Post by RamblinRosie »

I have suffered from RLS for years, tried many vitamin/mineral supplements, homeopathic pills/creams/remedies, aroma therapy, acupuncture, hypnosis, massage, cranial-sacral treatment, many drugs. I am now taking 1mg of Requip a.m. and 2 mg at p.m. Two remedies that have worked consistently for me for about 8 years are Darvocet N-100 and surgical hose. Both when needed.
I have other issues, a spinal cord injury and breast cancer (lumpectomy this past Jan). I have refused chemo and radiation and all drugs so far, but have recently heard about and have been looking into LDN, Low Dose Naltrexone. I googled LDN and was amazed at all the ailments LDN supposedly helps/cures, e.g., HIV/AIDS, MS, Parkinson's, Fibromyalgia, COPD, ALS, cancers, and much more.
Last month there was a European LDN conference in Glasgow. Last Oct the 4th Annual LDN conference in L.A.
This is an old drug, supposedly no side affects, FDA approved, cheap. Pharmaceuticals would not make $ on this.
Does anyone know of any studies w/LDN and RLS? Or the affect LDN has on RLS? I want to know more about it.
Thanks for any and all comments. RR

ViewsAskew
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Post by ViewsAskew »

I haven't heard anything, but that doesn't mean much. If it's supposed to have helped Parkinson's, that is a good thing in terms of RLS, just because they are in similar areas of the brain and something that helps one has a chance of helping the other.

Have you done any research on any research sites? (not required in any way, just curious)
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

RamblinRosie
Posts: 11
Joined: Fri May 22, 2009 8:01 pm

Does anyone know how LDN affects RLS?

Post by RamblinRosie »

Ann, Are there any research sites you'd recommend? RR

ViewsAskew
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Post by ViewsAskew »

Here are a few for searching medical articles:

http://www.jwatch.org/

http://www.ncbi.nlm.nih.gov/pubmed/

http://www.medscape.com/

There are many, many more, but these have a good cross section of topics. Other places, for example, only publish one journal or a specific to a condition or medical area.

While a Google search is somewhat helpful, these searches will net you more than you thought possible (usually).
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

SquirmingSusan
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Post by SquirmingSusan »

I've wondered about that myself, but I'm not in a position to try it. Apparently it doesn't work if you've EVER taken opioids on a regular basis for anything.

Let us know if you try it, how it works or doesn't work...
Susan

Neco
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Post by Neco »

Can also look around pubmed

RamblinRosie
Posts: 11
Joined: Fri May 22, 2009 8:01 pm

Does anyone know how LDN affects RLS?

Post by RamblinRosie »

Thanks for the links. I have been browsing for hours. Have found quite a bit of info. Not sure I can digest it all. Much is over my head. I also found a Yahoo Group lowdosenaltrexone which I'm trying to join. I've got a lot to think about. Thanks for your responses.

ViewsAskew
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Posts: 16237
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Post by ViewsAskew »

Those articles sure can be over our heads! But, if you read them enough, you start getting the lingo and can get the gist of them. Still, I am often stymied by something that clearly is medical-speak.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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