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Does anyone know how LDN affects RLS?

Posted: Fri May 22, 2009 11:43 pm
by RamblinRosie
I have suffered from RLS for years, tried many vitamin/mineral supplements, homeopathic pills/creams/remedies, aroma therapy, acupuncture, hypnosis, massage, cranial-sacral treatment, many drugs. I am now taking 1mg of Requip a.m. and 2 mg at p.m. Two remedies that have worked consistently for me for about 8 years are Darvocet N-100 and surgical hose. Both when needed.
I have other issues, a spinal cord injury and breast cancer (lumpectomy this past Jan). I have refused chemo and radiation and all drugs so far, but have recently heard about and have been looking into LDN, Low Dose Naltrexone. I googled LDN and was amazed at all the ailments LDN supposedly helps/cures, e.g., HIV/AIDS, MS, Parkinson's, Fibromyalgia, COPD, ALS, cancers, and much more.
Last month there was a European LDN conference in Glasgow. Last Oct the 4th Annual LDN conference in L.A.
This is an old drug, supposedly no side affects, FDA approved, cheap. Pharmaceuticals would not make $ on this.
Does anyone know of any studies w/LDN and RLS? Or the affect LDN has on RLS? I want to know more about it.
Thanks for any and all comments. RR

Posted: Sat May 23, 2009 1:51 am
by ViewsAskew
I haven't heard anything, but that doesn't mean much. If it's supposed to have helped Parkinson's, that is a good thing in terms of RLS, just because they are in similar areas of the brain and something that helps one has a chance of helping the other.

Have you done any research on any research sites? (not required in any way, just curious)

Does anyone know how LDN affects RLS?

Posted: Sat May 23, 2009 3:12 am
by RamblinRosie
Ann, Are there any research sites you'd recommend? RR

Posted: Sat May 23, 2009 5:32 am
by ViewsAskew
Here are a few for searching medical articles:

http://www.jwatch.org/

http://www.ncbi.nlm.nih.gov/pubmed/

http://www.medscape.com/

There are many, many more, but these have a good cross section of topics. Other places, for example, only publish one journal or a specific to a condition or medical area.

While a Google search is somewhat helpful, these searches will net you more than you thought possible (usually).

Posted: Sat May 23, 2009 6:28 am
by SquirmingSusan
I've wondered about that myself, but I'm not in a position to try it. Apparently it doesn't work if you've EVER taken opioids on a regular basis for anything.

Let us know if you try it, how it works or doesn't work...

Posted: Sat May 23, 2009 4:23 pm
by Neco
Can also look around pubmed

Does anyone know how LDN affects RLS?

Posted: Mon May 25, 2009 1:00 am
by RamblinRosie
Thanks for the links. I have been browsing for hours. Have found quite a bit of info. Not sure I can digest it all. Much is over my head. I also found a Yahoo Group lowdosenaltrexone which I'm trying to join. I've got a lot to think about. Thanks for your responses.

Posted: Mon May 25, 2009 2:04 am
by ViewsAskew
Those articles sure can be over our heads! But, if you read them enough, you start getting the lingo and can get the gist of them. Still, I am often stymied by something that clearly is medical-speak.