Pramipexole Problems

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
Betty/WV
Posts: 587
Joined: Mon Nov 29, 2004 11:11 pm
Location: West Virginia, Wild and Wonderful

Re: Pramipexole Problems

Postby Betty/WV » Wed Aug 01, 2012 1:10 pm

It scares me when I read of some of these problems people have with pramipexole. I take it and have for a few years now. Memory is bad so don't remember how long. I do have some problems, like weight gain, memory but have got relief from the WED. So are those problems from the pramipexole? I also take several other meds. When I read of the serious problems other people have, I wonder what is down the road for me.

BETTY/WV :shock:
Thanks to rls.org, I have learned so much about my condition. I have received encouragement from my friends here. This is a site I can come to when I am up most of the night, and I vent, and know those who read my messages understand

ViewsAskew
Moderator
Posts: 15742
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Pramipexole Problems

Postby ViewsAskew » Thu Aug 02, 2012 9:36 am

Betty, most of the people with problems had them from the beginning. I've always had trouble with it. It changed my moods from day one. I'd be walking down the street and would start crying. Over time, it just got worse. Every side effect I had with it (and I had a lot of them) were present from the beginning with the exception of one that took a few months to start.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Betty/WV
Posts: 587
Joined: Mon Nov 29, 2004 11:11 pm
Location: West Virginia, Wild and Wonderful

Re: Pramipexole Problems

Postby Betty/WV » Thu Aug 02, 2012 2:57 pm

Thanks for the inform., medication causes all kinds of problems, funny thing is doctors never recognize it. Even when you tell them about whats happening, they never connect it to the meds. I had been falling asleep driving (I think I posted about it). Didnt drive for almost a year, I'm back to driving short distances. But I started checking my meds., talked to the pharmacist this morning, all of my meds say "may make you drowsy, be cautious about driving) and some say do not take with other meds that may cause drowsyness. The pharmacist said that all blood pressure meds have this warning. And I take 8 or so meds. I don't know if anything can be done about it, but I really hate to give up driving. Imagine all the people out there driving under the influence of their meds.

BETTY/WV
Thanks to rls.org, I have learned so much about my condition. I have received encouragement from my friends here. This is a site I can come to when I am up most of the night, and I vent, and know those who read my messages understand

cmooreinthepines
Posts: 54
Joined: Fri Jul 27, 2012 5:47 pm
Location: The Pine Barrens of Southern New Jersey

Re: Pramipexole Problems

Postby cmooreinthepines » Sun Aug 05, 2012 2:39 am

You are not alone....I share your frustration.
"When I find myself in times of trouble"...."There will be an answer, let it be, let it be." (The Fab Four)

debbluebird
Posts: 2040
Joined: Mon May 21, 2012 3:27 pm

Re: Pramipexole Problems

Postby debbluebird » Mon Aug 06, 2012 4:34 am

I also with you on all of this. I lost my job due to memory loss. I was on so many meds at the time. I'm off of some of them now, but on three now for my WED. My memory is still bad. I hardly ever drive and when I do it's for short distances. The older I get the more sensitive I am to side affects. Along with memory loss I can't spell any more. Words don't look right to me. Simple four letter words sometimes just don't look right. I use the dictionary all the time. I really don't know what the future has in store for me, or any of us. DEB

rthom
Posts: 1530
Joined: Sat Dec 31, 2011 3:03 am

Re: Pramipexole Problems

Postby rthom » Mon Aug 06, 2012 4:42 am

That is very frustrating.

jakesmom
Posts: 353
Joined: Sat Feb 09, 2013 11:01 am

Re: Pramipexole Problems

Postby jakesmom » Mon Feb 18, 2013 8:25 am

Did anyone who ever found a doctor to get them off DA's lose the extra weight they cause?
I personally have this dream that when I finally find a doc who will listen and take me off them, I will have the needed impulse control to get the weight off.

ViewsAskew
Moderator
Posts: 15742
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Pramipexole Problems

Postby ViewsAskew » Wed Feb 20, 2013 3:34 am

jakesmom wrote:Did anyone who ever found a doctor to get them off DA's lose the extra weight they cause?
I personally have this dream that when I finally find a doc who will listen and take me off them, I will have the needed impulse control to get the weight off.



I lost most of what I gained on them....only to go back on them and put it all back on :-(.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

jakesmom
Posts: 353
Joined: Sat Feb 09, 2013 11:01 am

Re: Pramipexole Problems

Postby jakesmom » Wed Feb 20, 2013 10:34 am

My first full 24 hours without the patch in 2 weeks (went back to Mirapex) gave me the first night of 7 straight blissful hours of uninterrupted sleep. Of course I ate like a crazed person yesterday, but I really needed the sleep.

Alas, I am no a patch success story and am back to square one and need off Mirapex. I will need 1mg by 10 am and possibly another 1mg before bed. Gotta get off!!!!!!

Ok my dear friends, IF I manage to find a doc who believes in drug holidays and gives me one, after 8 years of 1-2 mg of Mirapex per day, scale of 1-10, 10 being REALLY bad, how bad and how long should I expect withdrawls?

jakesmom
Posts: 353
Joined: Sat Feb 09, 2013 11:01 am

Re: Pramipexole Problems

Postby jakesmom » Wed Feb 20, 2013 1:54 pm

UPDATE

Shouldnt have been so happy. My WED has started up already. Gonna be a long and painful 9 hours of sitting today!!!
Sleep deprivation was easier to handle than this.

Gotta get off Mirapex!!!!!!!

EeFall
Posts: 1493
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Pramipexole Problems

Postby EeFall » Wed Feb 20, 2013 7:39 pm

As someone with severe RLS and augmenting on Mirapex right now I could care less about the other problems with it. I have not slept for days and would pay almost any price to be able to take it again. It has literally saved my life many times over the dozen years. Yeah I have gained 70 pounds since then but I am still alive. It is a miricle drug to me. Just like the other drugs that work and get complaints like my methadone it gets more difficult to obtain prescriptions because of bad press. This Mirapex has given me years of peace.

jakesmom
Posts: 353
Joined: Sat Feb 09, 2013 11:01 am

Re: Pramipexole Problems

Postby jakesmom » Thu Feb 21, 2013 12:59 am

EeFall,

I am augmenting also, but can't convince my neuro to let me take a drug holiday from DA's. I want off for cardiac issues.

If I may ask, why can't you take it anymore?

ViewsAskew
Moderator
Posts: 15742
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Pramipexole Problems

Postby ViewsAskew » Thu Feb 21, 2013 4:03 am

jakesmom wrote:
Ok my dear friends, IF I manage to find a doc who believes in drug holidays and gives me one, after 8 years of 1-2 mg of Mirapex per day, scale of 1-10, 10 being REALLY bad, how bad and how long should I expect withdrawls?


So sorry it's a mess - it sux, doesn't it?

So, based on the people here over the last 5-7 years, I'd say one week is fast and one month isn't unheard of. A few people have had it a bit longer, but I'd say 2-3 weeks is the average.

I can honestly only remember two people since 2005 who actually managed to get through the increased symptoms without using any drugs. Most of us use a strong opioid to do it.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15742
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Pramipexole Problems

Postby ViewsAskew » Thu Feb 21, 2013 4:05 am

EeFall wrote:As someone with severe RLS and augmenting on Mirapex right now I could care less about the other problems with it. I have not slept for days and would pay almost any price to be able to take it again. It has literally saved my life many times over the dozen years. Yeah I have gained 70 pounds since then but I am still alive. It is a miricle drug to me. Just like the other drugs that work and get complaints like my methadone it gets more difficult to obtain prescriptions because of bad press. This Mirapex has given me years of peace.


I guess my opinion is very different because I augmented within a week of taking it and the last ten years have been like being on a merry-go-round operated by the devil. I wish I'd never taken it and hope I never have to take it ever again.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

EeFall
Posts: 1493
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Pramipexole Problems

Postby EeFall » Thu Feb 21, 2013 5:17 am

jakesmom wrote:EeFall,

I am augmenting also, but can't convince my neuro to let me take a drug holiday from DA's. I want off for cardiac issues.

If I may ask, why can't you take it anymore?


Augmentation. It started making RLS worse rather than to take it away. This has happened to me probably 4 times over the last 12 years or so. I have heard I am lucky that I was ever able to take it again after augmenting but I have been able to. The last time I started taking it was last year, I practically laughed at the doctor when he asked me to try it again I was so sure he had lost his wits and then it worked!

I am on a drug holiday, but only from Pramipexole. I am going to try to stay off a month and see if it starts working again. Nothing else works. My doctor has tried everything and told me I would have to wait for another new drug for RLS to come out and maybe it would help me. Right now Methadone and Lyrica make it so I can live fairly normal during the day but I get close to zero sleep. I only sleep when I fall to the floor from having fallen asleep. The RLS jolts me awake. This time it has been going on a little over a week and I am exhausted (to say the least), also I have to work or I will most likely be fired so I am working with zero sleep.

Mirapex allowed me to sleep at night, the most important piece of the puzzle and now it is gone. Years ago I could go months like this but now that I am getting older it is just too much.


Return to “Prescription Medications”

Who is online

Users browsing this forum: No registered users and 1 guest