jakesmom wrote:Thanks ViewsAskew,
I haven't written him, but I will.
I talked to my neuro's nurse. She is upping my pramipexole dose to 1.5mg in the morning and 1.5mg at bedtime and gave me tramadol 50mg for breakthrough pain. She took me off all sleeping aids and said hopefully this will help. Theory being maybe one of those are causing my problem. She said the tramadol is not a long term solution and I couldn't have refills.
I asked the nurse point blank if I was ever going to be taken off DA's. She said yes, I would have to. She told me to make an appt, next available being in May, but call her back if the new dose of pramipexole wasn't working. She told me to write down all my questions, symptoms, problems and concerns and bring them with me because the doc and I needed to discuss a new course of action.
The nurse called in the scripts and I noticed the pramipexole was a totally different color. I wonder if getting the same med from a different company will affect how well it works?
At any rate, the nurse was really nice, told me to give the new dose a week and see if it helped. She said my sudden change in symptoms and severity was not something they were taking lightly.
When I go back for a follow up, I am going back, book and notes in hand. From what I have read, and someone please correct me if I am wrong, but if i am augmenting isn't adding more and more pramipexole fairly pointless?
No sleep meds. Wow. Over 2 years on Ambien and off cold turkey. What a fun weekend this is gonna be.
Wow, waiting until May isn't what I was hoping you were going to say!
Per increasing the dose - initially this work pretty well, but I understand it to be less effective when you are "more" augmented. It may help, but it's just going to require more again in the near future even if it does. So,initially, I only needed .125 mg of Mirapex each night. I augmented in a week. So, I initially just took it earlier. Then it started earlier. Now I took two .125 doses split between early evening and bedtime. Then it happened earlier. So, the first dose was earlier. Then it was more severe. So, the dose was increased at night. Then it was earlier still. So, three doses. Then worse - so each dose was increased. Over 12 -14 months, my nightly dose went from .125 to .75 and one dose became 3, etc.
But, at the end of this mess, it got so that the increase didn't help so much.
If you get a chance, tell us what dose you started on, how many times a day, etc. then tell us how many increases, what doses, when and why the increase.