Pramipexole Problems

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pamndorr
Posts: 132
Joined: Wed Sep 10, 2008 7:57 pm

Pramipexole Problems

Post by pamndorr »

I think this drug is making me a crazy woman and just wondered if others are having the same problems.
I am taking 2.5 mg of Pramipexole spread throught-out the day...first dose taken first thing in the morning. I also take Clonidine 2mg at night and Tramadole 50-100 mg at night. I sleep a total of 3-4 hours a night and have been for a couple years now. I have gained so much weight and I don't really eat any different than before. I used to walk alot more but I cant walk too far anymore or my legs will go nuts. My legs are swelling from the knees down to my feet. It isnt from the weather...I live in airconditoning and it has been happening since Feb of this year. I get stabbing burning pains in my lower legs and it hurts to push on my upper legs or to grab my lower legs. These sensations come and go. I always have the rls feeling but the rest of it just depends on the day I guess. I also have arthritis in both knees but doctor said that isnt my problem. I also get these same feeling in my upper left arm. Not all the time..but when it starts I can hardly move my arm at times. Like I said it comes and goes. One doctor said he thought it was the rls was spreading....but he got sick and is no longer a doctor and the new doctor acts like she doesnt believe me.
The other things that are happening and the doctors say it has nothing to do with my drugs. I am sick most every day, I have been nodding off for short periods of time and I can feel it happening a lot more lately. Now when I am driving I can feel that I am starting to nod off and shake the feeling off. I also am having awful impulse control issues and I am having a bad time with my memory. I have told the neurologist about all of these things and she said it is has nothing to do with the rls or the drugs. She told me that the only way that Pramipexole causes these type of side effects is in people with Parkensons who take much higher doses then I do.
I really dont know what to do anymore....I am tired of trying to get doctors to understand....they just dont get it.
I did finally push them to send me to Mayo or someplace to figure this out but the insurance company said no. They told me I had to see more specialist in MI first..I have seen so many doctors and what a waste of time and money. All of my records were sent on to Mayo and Cleveland Clinic and both places have accepted me....but cant go without insurance paying for part of it. I did see a specialist that the insurance co wanted me to go to in Detroit...the other side of the state from me. I went back three times for testing and they found nothing more then a severe Vitamin D defeciency. They suggested a fine nerve biopsy to test for something...but the doctors here have done nothing about it. I swear they see me and they just want to push more drugs to me and get me out of there.
Just wondering if anybody else has had any of these problems. Plus I sometimes just need a place to vent and this is the only place where there are others that go through this, and if you havent been throught this nightmare or lived with and loved somebody that has this disease then you dont really know how it disrupts life.
Jeez....I read this and I do sound like a crazy woman. Sleep would be wonderful....I don't even remember what it is like to dream.
Thanks for letting me vent....

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