Hi its Hope again (BTW I am in Los Angeles with what you might think have the greatest doctors in the world, but none of them talk to each other. I have a hematologist/oncologist, pulmonary (had a pulmonary embolism 2 yrs ago) ENT always on call for bloody noses they seem to be chronic, internist who will only yell at me to get a pap smear. I had a hysterectomy and don't have anything there anymore) and a phyciatrist who teaches me computer tricks during our appointments and a therapist who immediately dosed me as being sexually abused by my father after half a visit. (no way true and so nice to say as he was dying at the time)
I had a bad spell after I last posted where I didn't sleep for 5 days and I figure the amount of movement by my legs equaled to a triathlon. I went to the ER because I was going to chew my arm or legs off. They gave me requip. Started out with 1 mg and told to take half for a couple days and ramp up to 4 mg per day. Tripping on the requip! Nightmares, screaming at night. Not good. So I call my good doctor (hematologist for immune deficiency) and he suggests a neurologist. Went there and they upped my Klonopin to 3 mg per night and stop requip. No good. Talked to the Hematologist and said really the Vicodin/Norco works best. He says he would like me off Norco but I ask him what do I do - take handfuls of other pills (other docs said Klonopin was worse than heroin) and this nasty requip and over the counter sleeping pills and go to bed at 4 am or take 2 Norco and sleep ok. So in my last post, I said he keeps upping the dosage. Now I'm on 100's. Let me tell you 2 of them work FINE. He writes it for 100 pills with instructions take one every 4 hrs. I try to keep it at 2 at night, but with my fibromyalgia and chronic fatigue I sometimes take one during the day so I can do stuff like laundry. So the prescription runs out quickly. I'm afraid to ask for a refill because it now seems I'm a certified druggie. I don't have withdrawals with even that much Norco which is lucky I guess, but I have been out since the end of December and am afraid to call for a refill.
So I still take the requip (I'm now up to 1) 3 Klonopin, OTC sleeping pills, no caffeine, food after 6 unless there are Oreos in the house. I keep my TV watching to a minimum at night and read which works better. With all that I go to sleep at 3 or 4 am and get up at 11. I have a short window during the day to get anything done and god help me if I have to take a drug test. I have found my pharmacy has tagged me a "registered user of" Norco so they don't ask questions.
I am retired (not my idea, my employers) and am trying to get disability and had a hearing with a judge in Dec and she can't imagine why I can't work. My old employer wont give me my timecard records unless the judge gets a court order. I can document I was off 65 days from January through May for the year she is asking. That could be a hint.
On top of that I have a killer nosebleed (10 hours - another emergency room) and now my ear is bleeding.
Why is this stuff so hard? I have enough troubles with the gamma globulin I have to infuse every month (takes a whole day) and as a result missed Christmas with what family I have left (first holiday season with both parents gone). I would like to go to the old time sanitariums and sit in the sun all day while nurses bring you your meds an you sleep all day, but I think that's called jail now. I have no motivation, I already take depression medicine and I'm so tired, so unable to figure out what to do, so confused. And don't go there with the daytime RLS. I have tried a heat pack where it really seems to start and that doesn't help, so the showers etc doesn't work. One of my relatives asked about melatonin. I rattled off the list of Class 2/3 drugs I am taking and you know, they don't ask again.
Yes you may call a wambulance. I'm having a horrible pitty party.